No pattern to pain? : Hi all.  Long story... - Endometriosis UK

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No pattern to pain?

Haych9 profile image
8 Replies

Hi all. 

Long story short, I'm waiting on a lap after a clear ultrasound but suffering with pain during deep sex, constant lower back and hip pain, shooting pains in groin and sometimes bleeding during sex. 

My pains recently have been daily, sometimes my back is the worst, usually my groin pain is terrible and travels into my leg. I also get a shooting pain just above the groin - I think this would be my ovary but not sure as it seems pretty low down? It's just above the crease where your groin begins and it's a sharp shooting pain that radiates into my groin. I've noticed that the past couple of days (despite tight chest, heart palpitations and shortness of breath which I think are caused by anxiety from all of the not knowing) I haven't had my usual pains and I'm due a period on Friday (but im taking my pill back to back this month so won't actually get one) I just wondered if anyone's symptoms get better closer to their expected period? So despite the period pains I get which aren't too severe, can the other back/hip/etc pains actually get better closer to menstruating? Just seems everyone's get worse but mine is near constant but slightly easing now I'm due on. 

Any help would be appreciated. 

Thanks X 

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Haych9
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Don1980 profile image
Don1980

I used to find a lot of my symptoms dissapeared once my period arrived. Not so much the case any more unfortunately. It was as if all the build up had been realeased or something. X

Hi, it sounds more like Adenomyosis to me rather than Endo. I had an ultrasound and neither showed, and then had two laps to remove endo, including a hystoscopy which showed nothing wrong with the inside of my uterus during my first lap and only endo on the outside which was excised. 

4 month post lap I still have the pains you describe so I've recently had an MRI which showed a shadow in my uterus leading to Adeno diagnosis. There's fb groups for Adeno - take a look they go into symptoms a lot there, but back, hips, bum and legs is a common one due to the ligaments that hold the uterus in place referring the pain. Palpitations and breathless too. Pretty much everything you have when you're full term pregnant.

So having had both, endo seems to hit more around your period and progresses slower from an earlier age. Adeno is all month, and my pains have got worse really quickly and is more common in the 35 to 50 group.

Funny you should say they've eased off, I'm due on  this week (I think - irregular periods is another Adeno factor) and my tummy last night went soft and the pain has edged off slightly. I too was wondering if that was normal.

I hope that helps ☺️. Enjoy your pain free day today.

Hx

Louoakley profile image
Louoakley in reply to

Hi girls, I was wondering the same too. I have usually got hip pain leg pain pain  on my right side most of the time but the last 2 months I've noticed they do tend to ware of when I'm on my period. I also have been getting a lot of pressure feeling like my insides are going to drop out. I've had a internal and ultra sound done just waiting for a follow up with my gyni doctor. I've even been refered to physio for my back problems because they didn't know what was going on either 😢 Hope you get there girls, take care xxx

Haych9 profile image
Haych9 in reply to

Hi, thank you. I have read about it somewhere but I thought it was related to pregnancy somehow unless I'm wrong, plus I'm only 21 and have never been pregnant so is this still likely? X

in reply toHaych9

Hi, i think it can still happen based on people I've seen on the Fb groups.  Do you have any clots in your period?

It is really hard to distinguish between endo, Adeno and all the other conditions down there as to what is causing one symptom.

I'm a bit of an Adeno warrior now as I've put up with it for months not knowing it existed just assuming it was still endo.

Have a look around and if you think it relates speak to your doc. 

Hx

Haych9 profile image
Haych9 in reply to

Thanks for your informative replies. I get a lot of clotting usually! My ultrasounds and everything were clear so next stop is lap so hopefully things may become a bit clearer soon! X

Good luck 🍀

Haych9 profile image
Haych9

Thank you so much for this. I am seeing her again prior to my laparoscopy so I will mention this all to her and see what she says. I will look into this further in the meantime. X

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