Endo on the bowel?

[endowarrior12]

Hey guys, can I ask those who have confirmed endo on the bowel what your main symptoms have been? I’m awaiting surgery to investigate but my symptoms seem to be getting worse. Very painful moving my bowels, constipation also too. I’m worried that I now have it on my bowel. If anyone could let me know their symptoms I’d be really grateful 💛 x

[VetteVixxen]

Hi Endowarrior12, sorry to hear you're struggling. I have recently been told that Endo has returned to my bowel. My symptoms have been painful bowel movements, no constipation, but the opposite, and the main symptom has been stomach cramps which I was told was due to a bowel obstruction when my bowel was irritated by the Endo. Hopefully you are all clear for this and wish you well for your surgery.

[endowarrior12 in reply to VetteVixxen]

Thanks for taking time to reply, I’m sorry to hear that, I’m the same with the stomach cramps, they’re agony so il mention that at next appointment. Thank you

[channy]

Hi there endowarrior12I have endo on the bowel for myself I have constipation extensive pain. My endo of bowel must be close to a nerve as I don't get sensation when I have a bowel movement so I have a device a peristeen system as my constipation is quite severe. Defo more bloating. I hope all goes well with your surgery

[endowarrior12 in reply to channy]

I’m sorry to hear that, it’s so painful. Thanks for replying

[Starfish123]

My endo was found during an operation. I always suspected I had it but was told I was mistaken. My symptoms were constipation especially in the days before period was due. Pain on left side more noticeable at night, I slept with a hot water bottle on my left side. I also bleed from my rectum whilst having a period.

I’ve since found magnesium supplements help constipation but don’t use if you have low blood pressure as they lower it.

[endowarrior12 in reply to Starfish123]

thanks for that I may try them, no issues with blood pressure issues but good to be aware of it. I’m the same with the hot water bottle, I’m covered in marks on my skin but it provides comfort at least. Thanks for replying

[ocke2030]

Hi,so far similar to you I get constipated before I am due on, hurts to do a number 2 horredous lower back pain. takes ages for the number 2 to come out sometimes up to 20 mins!!! a mix of blood in the poo.Pain in groin area. what a nightmare eh hope you get confirmation soon

[endowarrior12 in reply to ocke2030]

It’s awful isn’t it, thanks for replying to me. The sooner my op the better 🤞🏻

[EternalSunshine87]

I'm very similar to others here. Excruciatingly painful bowel movements and blood in stool or just blood on its own coming from the rectum. Lots of bloating and when I had to go, I had to go. It only happened when I was on my period, then it would go back to normal. I speak in the past tense as symptoms have eased since being back on the pill, but it comes and goes.

[Pinky_37]

Hi, I’m 5 weeks post op for Endometriosis, endometrioma, bowel Endo, adenomyosis and a bit more. I had a rectal shave during the op. My symptoms were bizarre. I’m grade 4. I had a little constipation with a sharp feeling quite low. Lower spasms at the front when I knew I needed a bowel movement. Then and during period I have loose bowel movements.

[Endowarrior1807 in reply to Pinky_37]

hi - have you found your symptoms have improved? I’m waiting for lap date currently

[Liche]

Hiya I have endo on my bowel that was found during laparoscopy and couldn't be removed so have to live with it. I have diarrhoea very often, which is super tiring, especially around my period time. No much constipation. I had to change my diet to keep the bowel less inflamed which help a bit. All the best with your operation.

[Lily1986]

Hello. So sorry you’re going through this too. I have reoccurring stage 4 endometriosis involving bowel and other organs for which I’ve had multiple surgeries including excision. My symptoms are bloating, horrible sharp and often twisting/ squeezing pain before a bowel movement. Often I get cramps afterwards. I’m often constipated which is incredibly uncomfortable but also get diarrhoea a lot too which feels almost identical to the severe period pain I get.

I think this is due to the bowel being attached to my uterus.

I also get a lot of pressure in that area when sat down and often get the feeling when stood up that I urgently ‘need to go now’ although often nothing comes out! Very frustrating!

Best wishes to you. Feel free to message me anytime I’ve gained a fair bit of knowledge and experience with my battle with this disease for so long. X

[endowarrior12 in reply to Lily1986]

Thank you I really appreciate your help. Very similar and have often had a shooting pain in my bottom, thought I was going mad 🤦‍♀️. I guess we’ll see what they find, it’s such a source of misery. I’m sorry you have this, such a cruel disease

[Lily1986 in reply to endowarrior12]

it’s awful isn’t it? up until 3 years ago I managed to work my life around it but now it literally rules my life and I have no life because of it. I forgot about the shooting red hot poker pains. Good luck with everything I hope you manage to get some relief xx

[TogetherWeAreStrong Moderator Endometriosis UK]

endowarrior12 welcome to the community and what a way to do so! This is a fantastic safe space to comfortably share and as you will see by the amazing responses you have received, you are not alone.

I really resonate with this issue, the poker like pains are so strange and unexpected, I suffer mostly on my left side and use a heat pad (it also makes my skin look mottled), bloating, flatulence (farting to us) and very bad diarrohea (this can last days, weeks and sometimes months). I had a colonoscopy after my last bout (months), they did not come to any medical conclusions with my actual guts.

I know you are worried that you now have it (endo) on your bowel, that's understandable, you are awaiting surgery, which will hopefuly provide you with answers you need. Whilst this forum can't give you answers, we can give you support.

We have various different support networks, please take a look at our website:

endometriosis-uk.org/

I will be posting some further links for Endometriosis UK Action Month.

Stay strong 💚

[endowarrior12 in reply to TogetherWeAreStrong]

Thank you so much for your reply and kind welcome, much appreciated