My name is Lauren, I'm 22 and a Physio currently being investigated for the possiblity of endometriosis.
About a year ago I started sudden onset of loose bowels, ranging from loose to complete diarrhoea and was going uptp 20 x day. A month after this started I developed kidney and urine infections that became so regular, I had almost 2 new bouts a week. I was taking cilest contraceptive pill.
I was under gastroenterology who found nothing abnormal, and the bowel is better but still loose, worse around my period.
I am under urology who also found nothing, all my urine samples show either no bacteria or mixed growth, despite my dipsticks being positive for nitrates and leucocytes. I am now resistant to the antibiotics they give me (amoxicillin, ciprofloxacin, cefalezin, fluroxotine, nitrofurintoin).
I saw a private urogynae who is amazing. I was taken off the pill and onto the mirena coil (due to family medial history) and had no periods. However I had it removed after 5 months due to me developing acne. I see my urogynae weekly for bladder installations.
Since coming off contraception, I've noticed my symptoms occur in a cycle and my urogynae has been thinking of endometriosis for some time. In the new year we are going to organise a laproscopy.
My symptoms are urinary urgency and frequency, with burning and often that constant need to go. I have pain between my navel and pubic region, that is constant and like a burning pain but can be spasmodic and sharp. I have pain that spreads up my loin region and back, and in my vagina, as well as my hip. Intercourse is painful - it feels like a deep stabbing pain and I'm generally really sore down below. My bowels are so irritable and always loose with random bouts of awful diarrhoea - I have done gluten free and elimination diets but nothing is helping. The bladder installations have helped to an extent.
Before I was ever on contraception, my periods were irregular, painful and unbelievably heavy. Being on the pill left them semi heavy, and I bled after intercourse. On the coil I had no periods, but bled for about a week after its removal.
I just want to know if anyone else has had a similar experience?