As I lay awake and crying for the 2nd night in a row I feel I truly can't take it anymore!! I am 28 years old and have been battling with endometriosis for the past 10 years+ and nobody will admit endometriosis is the cause of all my problems.
Year on year, month on month, my symptoms have gotten progressively worse. Over the years I've been jumped from pill to pill. I've been told I have IBS (which "conveniently" only shows during my period), ovarian cysts (which have never shown on the numerous internal and ultrasound scans I've had), once even being told I had kidney stones (again, only when on my period??) Only last year after a smear which showed irregular scars was I referred to gynagology. I told the first Dr I saw about all of my symptoms; painful intercourse, back pain, horrific period pain, swelling, bloating, prolonged periods (sometimes 2 weeks, with a few days break and back bleeding again), spotting, bowel pain during movements (and I mean screaming excruciating pain!). He conducted an internal and like my smear nurse could see Ectropion (my inner cervix has dropped outside, "causing" (more like adding to) painful intercourse and spotting) I've had that laser removed twice. He explained many of my symptoms being because of this and the rest just 'standard period pains' (he's a man, like he could ever know what that is anyway!!!). So I was booked in to have ANOTHER scan to check for polyps (all clear) before seeing someone again ... New appointment, New doctor! I explained all of my symptoms again and AGAIN I was told "all normal" but was booked an appointment to have ectropian lazered. New appointment .... New doctor. I had my Ectropion lazered and again the standard symptom checker. This time I actually spelled it out (to another new doctor) I am CONVINCED I have endometriosis. He then when into the speil of how difficult it is to detect and it can only be done through a laparoscopy and they didn't like to do this without trying everything to relieve the symptoms first. I wasn't happy with this but was given leaflets about having a coil fitted and the laparoscopy procedure and was to await a new appointment to discuss the next steps IF the laser surgery didn't help. I knew I wouldn't help because my symptoms ARE endometriosis nothing else!!
Anyway, whilst awaiting this 4th appointment I noticed a small spot like lump in my belly button which burst with blood during a period. Thought nothing of it and cleaned it up and carried on. It went after bursting. The following month, another heavy bleed and again this lump grew this time with another along side which was extremly large, swollen and black. The small lump again burst with blood and a few days after my period they started to decrease in size. The following month again, this time 3 lumps, each bigger than the last month however now the massive lump burst and there was blood everywhere!! I'd just moved house so had a new GP surgery. I went along and within a second of my new GP looking at my belly button he questioned if I'd ever been diagnosed with endometriosis? I could have kissed him. Hes 100% certain what is growing in my belly button is umbilical endometrosis Hes written to gynagology and I have an appointment in 5 days time!!
The point of this (very long) post, should I demand a laparoscopy or agree to the coil?? My heart is saying laparoscopy but can't deal with the arguing and fighting anymore!!