Constant tiredness

[Jessx]

Hello, I'm new to this site.. I'm 20 years old, and was diagnosed with endo in September, following years of pain. I am currently taking Povera, and it doesn't seem to be doing anything. My question is, is anybody else constantly tired? I and if so, what do you do about it? I'm getting frustrated at the fact that I sleep 10 hours every night and wake up feeling like I've slept for 3! It's driving me insane and I'm not sure how much longer I can put up with this. I tried seeing my consultant, who can't see me until 21st Dec!

[Beth1986]

Hi,

Welcome to the forum. I know exactly what you mean about the tiredness, I have to fight the urge to fall asleep every time I sit down.

Sadly I don't have an answer on this one but I wish I did so although my reply doesn't really help you it is always good to know you are not alone.

I hope your consultant can help you. I have never taken Povera but I imagine they have some side effects. Perhaps it is those that are adding to the fatigue?

Good luck xx

[Jessx in reply to Beth1986]

It's just nice to hear it's not just me!

Hope you're coping okay! xx

[flossy24]

Sorry to hear that you too suffer with endo! I have just been diagnosed with endo but I am a fairly active person. I run half marathons, go to the gym and play regular competitive netball. This might seem like madness when you think of how tired anyone with endo can be but I find then when I'm not active I struggle with the tiredness more. Now I am no dr but I think the endorphins released in excercise must contribute to the fact that I am more energised after I excercise. It also helps me feel less depressed and down especially around the time of the month. I would recommend taking up a gentle excercise class once or twice a week or perhaps swimming if you are able. It doesn't have to be strenuous but something will be better than nothing. I hope this helps and good luck!

[Jessx in reply to flossy24]

Thanks for your advice! I'm a member at my local gym but have 0 motivation to go at the moment! I'll have to get back into it if you've found it helps.

Hope you're managing okay! x

[Jakey26]

Hi Jess,

I have always suffered with fatigue although a naturally sporty person, I was told I had ME when I was 18! At 31, I was diagnosed with endo and believe this is what it has been all along. Just like Flossy, I find that exercise actually helps but understand it is not always possible. It's a vicious cycle as inactivity makes you tired, some days I feel like I'm walking through toffee it's such hard work and the older I've got the worse it has become. I do believe my endo symptoms got worse when I stopped doing as much exercise (formally classed as a 'fitness freak'!) but this could have just been the disease progressing naturally.

I went on provera for 6 months following surgery and it successfully stopped my periods therefore reduced the pain and swelling I get with them. My fatigue did continue and I also had some other nasty side effects such as shivering, itching all over and worse than normal mood swings. Once I came off them though and my periods returned, I think I preferred the side effects! If it's not working for you, is it possible to speak to your consultant on the phone before your appointment? Make sure you write all your concerns down before you go. Good luck x

[Jessx in reply to Jakey26]

It's good to know it's not just me! I'm such a worrier at the best of times, so knowing I have this makes every little symptom like tiredness, I worry about!

I am going to go back to the gym, having been paying for 6 months and not using it, from what you've both said, I think it's worth giving it a go!

Unfortunately I can't speak to my consultant, he's a private consultant but doing it on the NHS, so trying to get an appointment is like trying to find a needle in a haystack, never mind a telephone appointment haha.

Hope you're doing okay x x