Finally diagnosed: Home and recovering... - Endometriosis UK

Endometriosis UK

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Finally diagnosed

lovemylabs profile image
6 Replies

Home and recovering following diagnostic Laparoscopy and hysteroscopy yesterday. Extensive endometriosis and adenymosis found and some nodules removed. Next step hysterectomy. So glad to finally have answers and a plan of action. Feeling positive about the future and getting my life back.

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lovemylabs
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6 Replies
Deb1511 profile image
Deb1511

So glad you looking forward to getting your life back Hun, can I ask how long you waited for lap xxxx

lovemylabs profile image
lovemylabs in reply toDeb1511

Thank you. I have only waited 4 months, which suprised me. I live in Gwent, South Wales.x

Deb1511 profile image
Deb1511 in reply tolovemylabs

That's good and wishing you a speedy recovery so you can get your life back on track good luck xxxx

Tboag profile image
Tboag

It's great in a weird way to be the answers, I was diagnosed with Adeno and ENdo in April, had afew bits of Endo removed, and then in july had a hysterectomy for the adeno, and the rest of endo removed, 13 weeks on and I feel much better, not quite100% tho,

I was under a genral gyne surgeon, and the endo was/is on my utero ligament, which is recto endo, and is an area that is considered servere/complex

I think I have recovered well from the hysterectomy, but feel I still have endo symptons,

Can I ask if you are being seen at a specialist bsge centre, the genes at these centres are much more qualified to deal with endo excision,

Ive since been back to the Gp to get reffered to one, awaiting date,

Good luck

Xxx

Arcadia-77 profile image
Arcadia-77 in reply toTboag

Hi, just so you are aware having endo on your uterosacral ligaments (or in pouch of douglas) does not definitely mean you have "true" rectovaginal endometriosis. It's possible to have superficial disease there (even if it's extensive) but that wouldn't really be classed as rectovaginal endo.

Superficial rectovaginal disease isn't really "rectovaginal" because it only involves the peritoneum overlying these structures, and does not actually involve the rectum or vagina itself. That's the key difference between severe rectovaginal endometriosis and superficial endometriosis pouch of douglas. I hope that helps you understand. I'm concerned that Lindle is misleading many ladies on here about this.

Arcadia-77 profile image
Arcadia-77

Pleased to hear you finally have answers, and a plan in place. Good luck, and do make sure that if any more endo is found during your hysterectomy, they will excise it all at the same time. That will give you the best chance of relief, as a hysterectomy is only a treatment for adenomyosis not endo.

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