Hello community - this is my first post but i really need some help and to see if anyone has any advice or can give me a motivational speech!
Why why why do my daily thoughts revolve around when I can get back to bed (not normal for a 31 year old!!)
I excise, I hardly drink and I eat well. I've tried supplements and vitamins, but nothing but nothing seems to work! My iron levels are fine (blood tests) I have a constant dull ache but I can cope with that and the bloating. My periods are extremely painful which result in me often calling in sick, I never sleep during this time. I feel soo heavy even if I get 10-12hrs sleep....I thought I was possibly having too much sleep so tried to only have 7-8hrs but I felt the same. Is this Endo related?
As i type now having only been up since 7am (after going to bed at 9.30pm regular time) I could quite happily go to bed.
Any advice welcome
I should aslo add that I have had 2 ultra sounds which didn't show much other than free fluid and I have my first gynaecology appointment on Thursday. I am prepared......have all my symptoms listed and a list of questions to ask ready. Am hopeful.
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Alberg12
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lol you sound like me in bed by 9pm every night , up at 7am and feel the need to sleep by 10am and just cant wait for bed ... a 10 minute walk to shop kills im bloody knackered when I get back ...
My doctor has told me only just today that's its part of the illness and not much can be done till the right treatment is found , after researching online I see many ppl take berocca so I have bought that in hope it will help x
I am sleepy very quickly. Wake up tired and go to bed tired. I am not taking barocca, but immune tablets to make sure that i am not getting every caugh and cold every time someone is sneezing. But tiredness i had for a long time and this is not really improving. The week before my period starts i am exhausted and cant do much.
My tummy is bloated a lot and as well an ache in my right side. I started to do yoga, which seems to help me a bit with pain, but not the tiredness.
I suffer with fatigue too. I could quite easily sleep for 20+ hrs of the day. I find even when I'm taking it relatively easy I need a duvet day which is me literally sleeping all day and night every couple of weeks or so. If I don't do this I get so run down I catch every cough and cold going.
My social life takes a bit of a hit because I'm simply too tired to go out during the week and weekends I feel like I need to 'catch up' on sleep even though I gave at least 8 hours a night.
I don't tend to sleep well though and wake through the night with pains and needing the loo which I suppose doesn't help. Good luck with your appointment though hope you get some answers soon.
Many thanks for all of your comments ladies. As horrid as all this is it is comforting to know that others are in the same boat and it is not all in my head! Makes me feel stronger and know that i can do it...I will try to have a "normal" life! It is difficult as like you said LadyVR i never have a full night sleep that isnt interupted! My social life takes a hit too - I went out for a meal last night but now that means (although ive been invited) I cant phisically go to the meal with friends tonight. The thought of having to be all happy and chatty after a full dyas work makes me feel anxious. I really just want to go home and sleep. I do think i should push through it as i havent seen my friends in ages....but i just dont think i can which is sad. Im not drinking at all either and i know they will be having wine which will make them even more energetic....i hate this!
God reading this is like reading my brain! I'm only 21 but all day I think about going back to bed, I hate getting up in the morning and by 3pm I'm falling asleep. Not the life of the party at all!
Lcbxo I'm really sorry to hear you are feeling the same - especially since you are so young! My fatigue has becoming increasingly worse the past year or so. I hope that something can be recommended to get me out of this slump. Being positive and extremely healthy doesn't seem to work....just need those Zzzzzzz! My friend recommended Barocca!?
Just wanted to let you know that chronic fatigue syndrome and endo often go hand in hand - in fact i was diagnosed with cfs long before i even knew about the endo!!
I know from experience that it is a real pain. I've had fatigue since I was in my early teens so i know how heartbreaking it is to want to go out and be normal and have fun with everyone else but be too physically drained to do so. A lot of the time i would push myself to go out and end up feeling like i just couldn't cope and getting very overwhelmed. I've had a fair few panic attacks over it throughout the years!
If you pop to your GP and tell them about your fatigue symptoms they can refer you to your local chronic fatigue clinic. They don't have a magic pill that makes the exhaustion go away or anything but they can teach you techniques to help you with pacing your activities, which can be helpful if done correctly. the idea is you discover a 'baseline' - which basically means you create a timetable in which you do activities that don't exhaust you - then you build up from there. It can really make a difference.
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