Help: Hi just need to let off some steam... - Endometriosis UK

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JeanOsborne profile image
10 Replies

Hi just need to let off some steam. Have had such a bad day the pain has been so bad today , just tried to make doctors appointment and they can't fit me in till second week in October. I feel so desperate I just want it all to stop. Work really don't understand what I'm going through . Was diagnosed with severe endo and possible adeno in July through a lap where they also drained a 11cm cyst. Started on Zoladex beginning of month , since then my bowels appear to have gone to sleep which I'm sure isn't helping the pain . I suffer with depression anyway but have never before felt the way I do now. I just don't know what to do don't even know if I can face going into work tomorrow. Sorry for the rant.

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JeanOsborne profile image
JeanOsborne
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10 Replies

Don't apologise; I regularly feel it just isn't worth the pain and even considered going to Switzerland but although endometriosis is long-term and debilitating, they won't help unless it is terminal. I have spent an absolute fortune on private doctors and treatments and procedures only to have the same pain...

I feel for you....sometimes you just can't deal with it and to top it off...you've got to force yourself to get through work!

You rant away...I know sometimes I just yell out loud for the endometriosis to "f@£k off"......makes me look and sound like a loon but it gets my frustration out...

_Tamsin_ profile image
_Tamsin_

So sorry to hear that you have been having such a rough time over the last few months. I also had a lap recently in August when I was diagnosed with endo and adenomyosis, I know how overwhelming it can feel to get this diagnosis. It makes things so much harder when your work is not uderstanding/supportive as well. I ho

_Tamsin_ profile image
_Tamsin_ in reply to _Tamsin_

Whoops didn't mean to send this so early. I hope things start to improve and get easier for you soon and that tomorrow is a better day for you x

Morganjaded86 profile image
Morganjaded86

Awwww, Can you phone and ask for an emergency appointment, the way you seem to be feeling i think it is pretty urgent and you shouldn't feel bad for taking up an emergency appointment when you're feeling this way, the doctor needs to be aware of exactly how you are feeling and whether you are coping, it's clearly affecting your quality of life right now. *hugs*

JeanOsborne profile image
JeanOsborne in reply to Morganjaded86

I've actually phoned in sick so that I can do that today . Hopefully I can get some help . Thanks for your reply.

rebecca66 profile image
rebecca66

I really would take yourself to A and E, honestly. They may actually do something then

rebecca66 profile image
rebecca66

Or a walk in centre? From experience they seem to push things through

JeanOsborne profile image
JeanOsborne

Hi Lindle yes I'm at an accredited centre . Because they highly suspect adeno I'm having a hysterectomy for that and they will excise the the endo at the same time . There will also be a bladder and a bowel surgeon present . It's just this Zoladex , I'm just not sure I can handle the side effects.

JeanOsborne profile image
JeanOsborne

The only things I have been taking are paracetamol and ibrofen. Just been to docs and they've given me some co codamol for the pain, laxido as I'm severely constipated due to the Zoladex and also Citalopram for the severe depression also made worse by the Zoladex have to go back next week to see how I'm getting on.

JeanOsborne profile image
JeanOsborne

Thanks Lindle for your help and support its so nice to know that we're not alone.

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