Endometriosis. Painful bloating. Unhappy ... - Endometriosis UK

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Endometriosis. Painful bloating. Unhappy with how I look & comments on it. Weight gain. Fed up.

Jaydex profile image
7 Replies

long story short-

SO, I was first diagnosed at 18/19 already at stage 3, so its only escalated since then(now at stage 4). The pain, suffering, not being able to work or study without "reliability" warnings... Also been having various surgeries for the past 9 years.

Luckily I was able to fall pregnant, horrid pregnancy, ideal labour, she's now 5...

This time last year I had surgery, didn't recover well at all, along with endometriosis I had another disease... Full on party in my womb(it wasn't the best party I wasn't invited to).

now I've been on zoladex for 5/6 months, I've been bloated and it has been very painful ad people have been asking if I was pregnant (which is just perfect as I know I cant even conceive and wish more than ever to be able to have that privilege again, no matter how much pain it caused).

I used to suffer from anorexia and bulimia as a teenager and in my early twenties, weight and my self image has also been an issue, not in a vain way, but in my own mind it really bothered me and I've always been a petite little lady. People comment on my weight and how I look now, so when I come to try accept how I look the comments always knocks me back a LOT.

I'm always insecure, paranoid and it's come to the point I cant even look at my belly without feeling angry and like I just want to cut it off- horrid but honest.

I cant accept how I look now and I cant really be happy in my relationship with a guy I love so much because I haven't been comfortable with the way I look and intimacy has been a huge problem.

I don't know what to do, I need some sort of information and advice.

Not just to accept myself as I am, because the bloating wont go away and the pain is awful. Diets/exercise obviously doesn't help...

My relationship and depression is getting really low :(

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Jaydex profile image
Jaydex
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7 Replies
nenaj1 profile image
nenaj1

So sorry u feel so sad ;( have u ever taken vitex chastberry? Its great for balancing hormones and mood and women with endo have had good results. The organic tincture without alcohol is best.

Jaydex profile image
Jaydex in reply tonenaj1

Thank you for replying, I will definitely look into these things :) x

M123 profile image
M123

Hey Jaydex,

I feel for you and just want to send you a big hug! I get seriously bloated and since the op my belly is so swollen I look about 5 months pregnant! The worst is that my dr said since having 3 surgeries now my muscles will take longer to get back working and I find working out extremely difficult with my endo anyway. My sister has just been diagnosed critical with her eating disorder and I can fully understand how it effects the way you think about your body And how the comments must be hurting you.

All I can say is your partner is with you because it's you. Your looks, your qualities, all those little things you don't like about yourself your partner loves! It's hard, I suffer with a very low self esteem and it causes problems with my boyfriend but you have to believe you are loved for you who you are. Your partner thinks you are the most amazing person in the world!

I'm still looking into the best things for bloating and I'll keep you posted on what I find! I'm working on changing my diet, but it's the medication You need to talk to your Dr!

Remember you are not alone!

Xxx

Jaydex profile image
Jaydex in reply toM123

Thank you for your reply :) all of them mean a lot to me. Please keep me informed, I really appreciate it. I'm going to try get a doctors appointment asap. xxx

AshleyEngineer profile image
AshleyEngineer

I'm so sorry that you feel so bad! I absolutely hate bloating and I know what you mean when you say you look pregnant... I started getting the stares from family a few months ago and they made me VERY uncomfortable. Like you, I've always been petite, so people notice right away when you put on a little weight (and bloating makes it look like a LOT of weight). I started taking endovan (enzyme+herbal supplement) a month ago because the pain for me had just gotten constant and unbearable. My bloating has been reduced a ton (along with my other symptoms)! I also take turmeric about every other day, St. John's Wort every day (for mood), and sarsaparilla root (for my psoriasis). I'd been doing all of that before though, so I'm convinced the endovan is really helping me with the bloating and pain.

I hope you are able to find a way to recover and/or cope (virtual hug)! People are just awful and insensitive.... I'm so sorry that they keep knocking you down every time you come to accept yourself! :(

P.S. I know I sound like a commercial, but I PROMISE you that I don't work for any drug/herbal company. I'm only sharing what has helped me cope with the pain/bloating/mood swings in the hopes that it might help someone else too.

Jaydex profile image
Jaydex in reply toAshleyEngineer

hahaha with all the people trying to sell herbal life, smoothies and things!

Thank you for your reply, I will be looking into the herbal thingys :)

RedMae84 profile image
RedMae84

I have the same issue and feel your pain. Being so petite as well, I currently look about 4 months pregnant and it feels so odd. At the moment my body has bloated after my surgery (been 6 weeks ) and prostap, that I can't even fit into my jeans/trousers :( to make it worse 4 years ago I used to model and looking at those photos now just makes me want to cry sometimes.

I totally understand how you're feeling and this is something we have to try adjust to with time. As long as you have a caring and understanding partner, that's all that matters. Talk to your partner about your insecurities. My husband has helped me so much with trying to feel better about myself.

Do little things to make yourself feel better, like changing your hair or getting new makeup. I find it makes me feel bit more confident. And also surround yourself with positive and supportive people :)

PS: thanks to those that have advised on the herbal stuff, very helpful :)

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