Todays the day...

[Gillibeanz]

Hey there, Just an update really and a moment for me to get out what's on my mind, if you guys don't mind.

Today I've got my appointment with the consultant after being diagnosed with Endo a couple of months ago. Don't really know what to expect from today. I already know they can't do a Lap as they said it was too progressed and had already fused my organs together so trying to separate them would risk rupturing my bowel. So I guess I'm expecting to just be prescribed some kind of pill and painkillers. They did mention the coil when I was in hospital but I'm reluctant to have that, may sound silly but I'm sick to death after years of going o the doctors complaining of pain down there of being prodded and tested down there, so want to limit anything like that as it usually hurts me and find it so unconfutable. Just wondering if I should be expecting any kind examination today? As soon as I hear the word 'gynaecologist' I expect an examination of some kind down there, but I wouldn't have thought they would need to as obviously endo is on the outside so there's nothing they would be able to see and they have already seen all they need to from my op to removed cyst on my ovary. I'm worrying for nothing I think?!?

So my appointments at 4:30, wish me luck guys that they can give me some meds that will at least stop me feeling so horrendous every month. And also keep your fingers crossed that I don't kept waiting for an age, I've got Derren Brown tickets to be getting to this evening, ha ha....priorities and all that!!!

Much love to you guys and thanks for listening (reading my moans) Ta. Gill

[Sunshine_1976]

Sounds like me - I have severe stage 4. Fused together etc. sucks right.

I had cyst removed and nothing else can be done. Too risky.

I'm trying for a baby via ivf - only way now and I'm scared and just wish I didn't have endo. I'm lucky cause I don't have chronic pain - just an array of other symptoms.

Sickness, migraines, fatigue, depression, frequent urination etc. sucks.

Let me know how your meeting went.

X

[Gillibeanz in reply to Sunshine_1976]

Hi,

You're right, it does totally suck! I think I'm lucky in a way that I only have really bad pain with it for a few days of the month and am usually alright apart from the odd niggle for the rest of the month. Other then that it's the heavy periods and fatigue but again, only for about a week of the month.

The consultant has advised that I carry on taking the pill I'm on but instead of having the 7 day break everyt month I'll just keep taking them back to back and only have a break and have a period every 3 months or 5 months. So I'm going to give that a go and I've to go back in 4 months and let them know how I'm getting on with that. Only problem I have now is that I smoke (tut tut) and they won't prescribe that kind of pill unless I quit because of increased chances of blood clots. But I'm going to try, and at least now I've got a massive reason to pack it in, I just know it will be a struggle.

But if I can't quit smoking my other options are the coil (which I really don't want) or injections that will zap away all of my hormones and put me into temporary menopause, which doesn't sound too much fun. So it looks like I'm just going to have to bite the bullet and give up, I've decided monday will be my first attempt, ekkkk!!!!

Wishing you lots of luck with your IVF, hope everything works out for you You are totally right, it does suck massively!!