I have stage 4 endo with massive bladder involvement. The endo is inside my bladder, not just outside. I have been speaking to various surgeons, including a couple of urologists who both say that it is too difficult to excise because of where it is- trygone area, close to the ureters. I have been offered a bladder ablation (inside) on the NHS and am having private surgery in 10 days or so where they plan to invite another urologist in as a courtesy to give his view on whether it is possible to do or not. I wonder whether anyone on here has been in the same position and whether anyone has ever had a partial bladder cystectomy performed successfully? Is it as rare as everyone is making out?
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