Endometriosis and PCOS: Hi All I have had... - Endometriosis UK

Endometriosis UK

70,123 members51,938 posts

Endometriosis and PCOS

Hayley-Poulter36 profile image
0 Replies

Hi All

I have had a long and complicated history!

I was diagnosed with PCOS at 13 and put on the combined pill. At 18 I started to get sever migraines and was removed from the pill. What followed was a series of years in which I was given every type of contraceptive possible, progesterone only, to try and control the bleeding. After a few years the doctor suggested I try nothing at all and see what happens in case the PCOS had "slowed down". Basically my period got heavier and heavier, more painful, dizziness etc. and longer and longer. I was once again put back on various forms of contraception until one family planning doctor properly looked at my history and said why had nobody thought to look for another source of the problem. Generally PCOS presents with no bleeding or irregular bleeding, not constant bleeding. She suggested Endometriosis which I took back to my GP and got a referral.

I had my laparoscopy in February 2013 where they found endo and removed it. I was not on anything at all following the lap and by October 2013 was still suffering from constant bleeding. I was put back on the combined pill (dianette) to see if the migraines came back. Which inevitably they did. Essentially being on the combined pill is the only thing that controls the bleeding.

Since the Lap I hadn't had the "endo" pain or bleeding which I learned to recognise from ordinary cramps and bleeding. But the last few months have noticed a slow return. I am currently under a Gynae specialist GP who has me on progesterone only pill (cerazette) and am trying at the moment oestrogen gel. So far to no avail as am still bleeding and pain etc. keeps getting worse.

My normal GP has said that there would be no point having another laparoscopy as until I have children (not ready yet) the Endo will just keep coming back. She suggested a "fake" menopause until I am ready to have a baby. Have a lap and then get pregnant as quickly as possible.

I'm wondering about others who have had more than one lap and whether this is advisable? My specialist GP says that after the Lap I should have been given measures to stop bleeding, and stop endo spreading again, which I wasn't. So I'm thinking if I have the lap again and they actually correctly control it afterwards it may be more successful?

Either way I've had 18 months without endo pain and bleeding so surely even if it lasts 18 months that's worth the lap again?

Would be grateful for thoughts as am gradually getting worn down by being called "complicated" by doctors and them throwing their hands in the air because they are "out of answers".

Thank you

Hayley

Written by
Hayley-Poulter36 profile image
Hayley-Poulter36
To view profiles and participate in discussions please or .
Read more about...

You may also like...

PCOS but Need Advice! Endometriosis

irregular bleeding/periods, severe bleeding/clotting after intercourse, pain and discomfort,...

Endometriosis, PCOS and first ever blog!

weight gain and hair thinning, acne and pain. Its probable that I have Polycystic Ovary syndrome...

Adenomyosis and Endometriosis and PCOS!! Feel doomed at 31!!

about treatment that you had. I have been offered prostap and another lap as I have a lot of scar...

Support Needed - Endo & PCOS.

this group. I have endometriosis and pcos and lately have been struggling emotionally. Back in 2012...

I have now been diagnosed with endometriosis and PCOS!! anyone else manage to have both of these?

the same time? I have been diagnosed with endo for 11 yrs since I was 19, I have had 4 surgeries...