Signed off work?: Has anyone been signed... - Endometriosis UK

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Signed off work?

Hells83bells profile image
11 Replies

Has anyone been signed off work because of their endo pain? I'm waiting for an op in feb and not sure I can cope with pain from sitting for hours as required in my job

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Hells83bells profile image
Hells83bells
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11 Replies
Kerri215 profile image
Kerri215

Over 2years ago before my 1st op i was signed off work due to my endo pain.... Explain to your doc and they can sort it for you x

Katie888 profile image
Katie888

I've been signed off work for the last 4 months due to severe pain from endo, I was diagnosed with it in jan and had a lap to remove some it at the same time. I felt better for the first couple of months and then the pain started coming back around my periods and then all the time around 4 months ago. I'm still off work and in a lot of pain been on prostap injections for 3 months but booking a second lap to see what's going on again in a month or so. It's really hard admitting you have to have time off work but I have to keep listening to my family and friends and telling myself 6 months or so is nothing in the great scheme of my life! I would strongly advise trying to maintain some kind of routine whilst you're off sick though because for the first 2 months I was just bed-bound and it can really affect your mental health and make you feel so down, so maybe try to move downstairs and get out for fresh air every day. Like the other lady suggested go to your docs and explain and they'll give you a sick note. Try to stay positive even though it is a shit situation! X

scribble1603 profile image
scribble1603

Yes, I had time off last year and my GP was very supportive. When I returned to work reasonable adjustments were put in place by my employer which has really helped. Have you thought about any adjustments that could be made to relieve your pain at work? xx

Amy22 profile image
Amy22

I'm currently on light duties due to my endo pain and all the other back pain that comes with it, I'm also under ocupational health and work and we are currently working out a plan as I have to have around 4 days off each month! Some work colleagues are very supportive others not youv got the think about number 1 and what your body can handle xx

DaisyL profile image
DaisyL

I worth about being off work and am currently off as my pain is so bad. I just want to cry and it's hard as I would much rather be at work!! I panic about getting a sick note and how it'll affect me when I return! Is this classed as a disability?

Hells83bells profile image
Hells83bells

Thank you for all your replies. The pain seems worse when I'm sat down so I'm not sure any adjustments can be made to my job because I sit a lot on the computer. I think I'll go to my gp Monday because even waking today was proving painful because the pain is radiating down my left leg. Lucky for us I live in a bungalow so no hobbling up and down the stairs. I'll let you all know how I get on Monday. Thank u for all your on going support. It's nice to talk to the only people who seem to truly understand. X

Princess777 profile image
Princess777 in reply toHells83bells

Hi again I am in the same boat as you . I went to my doctor today post op lap 29/12/2014 and was sure he was going to say back to work etc. He did not ! He gave me some tramodol forthr pain and 2 more weeks of work . I have a appointment with consultant on the 23/2/15 to decide treatment plan. So don't worry go and and see your go and explain how you are feeling . Good luck and take care jx

Hells83bells profile image
Hells83bells

Hi everyone thought is give you an update. Went to doctors today and he was honest and said that he was stuck what to do with me because it's the operation I needed. He said he could give me codeine and said to take it easy. Said he would sign me off until my operation if still in pain. Got home took the tablet and within half hour had the worst upper stomach pain and was violently sick. Called NHS direct and they said sounds like a allergic reaction and they called ambulance. They came out did obs and confirmed it was a allergic reaction. So back to square one again. I've got to go back to the doctors again tomorrow to get a new pain relief :-( feeling fed up now.

Rockflower profile image
Rockflower

Hey. Did you get sorted at the doctors today? Sounds awful having an allergic reaction

Hells83bells profile image
Hells83bells

Hi flowerpots thank you for thinking of me. Doctors went ok. I'm extremely lucky my doctor is very supportive and proactive. He was honest and said whilst I'm waiting for my lap there wasn't an awful lot he could do. He didn't want to give tramadol and instead gave me naproxen and signed me off work for two weeks. He said also if I needed signing off longer than he would. I was a bit upset because I didn't want to be at home until my lap at the end of feb. I decided I had nothing to loose by calling the hospital to let them know I'm off and would happily take a last min slot for surgery if they had a cancellation. By total luck they have had a cancellation for 26th Jan. I can cope a lot better knowing it's going to be sooner rather than later. X x

Lost2020 profile image
Lost2020

Hi all, so a lot like yourselves I have been signed off work and my pain threshold has got soo high now because of this as I cannot take strong painkillers and drive so I’ve done what people who don’t understand the condition when they tell you to “JUST GET ON WITH IT” I have been signed off now for 6 months now because of Covid and delays in having surgery to remove it when I was first diagnosed and it was removed I thought great all done ✔️ this wasn’t the case whilst in recovery which took a while I could feel the pain returning I rung the hospital and told them in which I was told Noo it’s to early for it to come back Anyway fast forward 7months I went for a usual scan (also did a Preg test to rule it out as this is what they 1st jump to and didn’t want to seem like I was getting fibbed off ) and the nurse was super lovely she was aware of endometriosis and she confirmed what I was trying to tell the doctors and hospital, anyway I’m still waiting to go into hospital but as you all know this had been pushed back my mental health has serious been impacted by this and so I have a check in chat with a mental health link worker and he openly admitted he didn’t know about endometriosis or pcos (which I also have ) and how they can make u feel I told him I’m in constant pain and he told me that I’m thinking I’m in pain ….in other words I’m making it up in my head …..,I felt so disheartened because of this.

I would like to say I understand with what’s going on in the world this have changed and the nhs has literally been so stretched with services etc and they have been so overrun and they do a fantastic job the nurses and doctors etc on the front line of medical conditions but in terms of mental health I believe this is something they should be aware of that endometriosis and similar conditions like it they should be aware how it can effect women and men as partners need the support to…. You see it on tv,posters,hear it on radio about mental health and how it is super important but again as much as you can read about it until you have lived through it or a loved one has been effected by it you don’t get to see the bad parts the only way I can explain it as your in a group of friends and a friend bring another friend who you don’t know but you get a bad vibe about them but you speak to them to be polite but you know you are being civil for the sake of your friend that’s how I feel mental health stigma I feel everyone in power talk about it but they rather avoid being too in depth with it and this unfortunately is causing so many people to take their own lives because they support wasn’t there ….as I explained previously I understand the nhs is over running currently and the drs and nurses and people on the front line I cannot commended them enough and are severely grateful to the dedication they have all put in and I think it should show in their pay packets they have all played a part in recovery for this country……

Sorry about the rant but for a medial professional to turn round and not know that endo and pcos and other condition medical link workers are not aware of iust how much it effects people xxxx

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