Today I feel defeated, crazy and very frustrated. I wanted some advice from others living with this horrible disease.
I had my lap done 22/07/14, nothing was treated as stage 4 endo was diagnosed. My consultant has arranged an appointment for me on the 20/08/14 to discuss surgery to remove the endo.
Initially the pain of the surgery subsided quicker than I had expected but on Sunday afternoon my endo pain hit hard, completely flooring me. I took my normal concoction of 400mg iburophan , 60mg codine, 1000mg paracetomal and 100mg tramadol all with little affected, so I went to A&E who treated me with morphine to ease the pain and I was sent on my way. The pain never fully subsided so I took my pain relief through the night, then yesterday afternoon the same intense pain kicked in so I went to A&E again. The doc there rang gyne as I had been in the day previous, after consulting them she came back to inform me that gyne said co-codamol and iburophan is really all that is need to lift endo pain and that I shouldn’t be coming into A&E. I was so angry and embarrassed. In my opinion I have a high pain threshold, but the pain was so intense and severe the normal meds didn’t work.
Sorry for the long post, I wanted to know if anyone else has experienced this intensity of pain? Or am I being weak and not dealing with the increase in endo pain? the doctor last night made me feel like im going crazy and this is all in my head.