Hi ladies, I will keep it short. My lower back is absolutely hurting me. I feel paralysed from the pain.

[trip21]

My consultant has put me on microgynon for 3 months nonstop. Can anyone help me ease this horrible lower back pain. I have work tomorrow and I feel like crying from the pain. Please advise. Thank you. X

[dollypop1994]

Hi trip21,

sorry you're feeling bad take something for the pain then try putting a hot water bottle wrapped in a towel on your back (don't put it directly against your skin without the towel or it will leave a mark) or try having a long soak in the bath. I use something called Tiger Balm Red (buy it on Amazon) when my back, joints & stomach hurts & it really helps. Hope you feel better xx

[trip21]

Thank you dollypop1994. Right now I feel like bursting out into tears. I have been on since Wednesday and just now as I was laying down I felt a gush and before I knew it I was already soaked. I had to rush to the bathroom to get changed. Massive clots of blood been gushing out these past few days but just now was the worst one. It was so embarrassing and humiliating for me as my husband was right here though he is very supportive. I am so sick of it. Thank you so much for your advice. I will try the hot water bottle. X

[dollypop1994]

Aww I've had that before too I was so embarrased when it happened to me. I was getting terrible heavy bleeding before my laparoscopy in April & it's even worse since then! & having a good cry does help sometimes- get it all out of your system cuz it sounds like you need it! I know how horrible the pain in your back can be- I've got stage 4 endo all over my uterus, bowels & in my abdominal cavity & the pain in my lower back is awful. If you ever want to talk then I'm here x

[trip21]

Thanks hun. I had my first lap in April too. Likewise I feel worse! That's why I went to see my consultant. She explained I had patches of the endo on my pouch of douglas and ovarian fossa. I have been in more pain since. I don't know how to deal with it sometimes. Some people don't understand what we're going through and they make me feel as if I am milking it and playing on it. That hurts even more and it makes me feel so awful. I really hope we get some relief at some point. Hugs. X

[dollypop1994]

I know what you mean about people thinking you're milking it- some people are so ignorant & just because they don't know how it feels they treat you like an attention seeker. You just want to scream! There's times when I feel so useless & miserable about it all got an appointment with the bowel specialist on wednesday as they couldn't get my endo during the lap as it was too dangerous so gotta have a big op. Were they able to get the stuff from your ovarian fossa & pouch of douglas or do you need more treatment?

I think there needs to be more education, awareness, advice & stuff like support groups for all of us endo ladies- it's one of those conditions that practically anyone who doesn't have it is totally oblivious to & they're those idiots who say "oh you're over-reacting" it's not fair. Hugs xx

[trip21]

It's such a relief talking to endo sisters on here. At least we understand each other and give each other the best support we can. Where about are you hun? I have been thinking of trying to organise a get together with endo sisters in my area Wolverhampton City just so we can have a chat and have a coffee or something. Maybe you could look into it in your area as well. If no one else is helping us maybe we should all help each other ourselves. Hugs. Xx

[dollypop1994]

Its rediculous- my hospital didnt even have any advice leaflets or information for endometriosis sufferers we need more sites like these

I'm in dorset, near weymouth. That's a lovely idea would be nice to chat with other endo sisters so will give that a thought To be honest I think theres no better support than people who are in your situation too hugs xx