Hey, sorry if I have been complaining a lot recently but omg this pain and other issues is affecting every part of my life and wellbeing.
So I’ve been away for a tournament this week and the last few days I’ve been getting the signs that my period is nearly here (the joys 🙄) like a dull achy feeling in my lower stomach like near the pubic bone area and sharp pains around the ovary area. Painful boobs and nausea etc. I battled through until today and now I’m on my way home sat silently in agony for another 2 hours 😫 I can’t tell my parents as we had an argument before about my pain and stuff. They are not the kind of people who can put themselves in other peoples shoes and think I’m making it up.
Anyways they are making me go practice all next week even though I know I may be on my period so I’ll be in so much pain, I’ll struggle to leave the house. But I’ll have to put on a brave face and battle through.
I’m at a loss here as I’m feeling so down and sick of being in pain 3 weeks a month. I have to schedule around my pain and even then I get the timing wrong sometimes. I can’t see my boyfriend as I’m scared he will want sex and I can’t yet due to pain and scared he will leave me. Even though he has been my rock through everything the past year and I would be in a much worse place without him. My parents aren’t helping as they just shout at me and don’t understand. I’ve even tried telling them about endo but they don’t listen.
Should I see my gp to see if they can hurry my lap up as it’s affecting me mentally, physically and emotionally. Plus it’s affecting my life in so many ways?
Sorry for the long post/rant 💕💕
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princessk09
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Can I ask how old you are? Your parents don't sound very supporting at all, maybe it would help if you took them to the doctors with you so maybe they would understand your possible condition more and realise how it's making you feel. Unfortunately most of the people on a waiting list for surgery struggle with the waiting too so I doubt they would move you up the list due to this but have you considered trying different painkillers? I've been hospitalised due to pain and unfortunately the only thing they can offer you is better pain management x
I’m 19 and I’ve tried so many painkillers and contraceptive pills and nothing has helped. I can’t take my parents into appointments as I have to mention sex and they think I’m a saint 😂 so that would be awkward and cause another argument. Xx
You only have to discuss what you feel is appropriate with what they need to know, the doctor won't mention it as it's patient confidentiality. I personally don't like the pill as I'm very sensitive to hormones and it's the same with painkillers as they make me sick so I can sympathise with that. How long have you been on the waiting list? xx
I don’t even know who my surgeon will be but hopefully it’s the one at the endo Centre near me. My gynae is an endo specialist but she scares the crap out of me haha. I can’t talk to my mum about this as she gets uncomfortable talking about periods, she won’t even say the word or if I mention it, she changes the subject so my only hope is this forum tbh.
I think I’m impatient as it’s affecting every part of my life and without answers, my parents think I’m lying which makes me feel worse xx
I was only put on the waiting list on Thursday but it's only a 4-6 week wait, 23 weeks sounds too long. Maybe you could ring up and ask if you could be put on the cancellation list as some hospitals do offer this for people who don't need much notice for surgery xx
I am on the cancellation list as well but nothing has come up yet. I don’t even know what hospital I’ll be referred to as no one is telling me or knows tbh xx
I might be wrong but I always thought you have surgery at the hospital which put you on the waiting list, I saw a gynaecologist at my local hospital and they were useless so I asked my gp to refer me to a hospital that I knew were specialised in endo. Did you go for a pre op? xx
I saw my consultant who said he was 99% sure I have endo so he skipped the scans and blood tests and sent me straight down to pre op, he did say though that I wouldn't even be put on the waiting list until I had a pre op but that could be just their regulations xx
There are other alternative hormone treatments/ contraception methods if the pill isn't working for you. I'm currently using the Depo injection which has taken the second injection to start making a difference and won't lie, my first injection caused mayhem and none stop bleeding, but im due my third in a week or so and think it's going in the right direction for my pain management and blood loss has stopped. I too am on the waiting list for my first laparoscopy, it's taken 13 years of misdiagnosis and other investigations to get here and I am now aiming for a hysterectomy.
I know a lady who used the implant between pregnancies her periods stopped completely and had no period or associated symptoms for 6 years at a time.
I think womens hormones are complex and individual so it seems to be trail and error. I do think that you should visit your GP to discuss your feelings, hormone/ contraception treatment but unfortunately they won't push you through quicker as everyone on the waiting list will be trying to manage their pain and emotional state (I know I am).
I'd find as much information as you can about endometriosis and give it to your family to read through, maybe let them read other people's stories on he NHS website, it truly is hard when people who should be supportive don't understand what you are going through xx
I’ve tried a lot of different contraceptive methods and I reacted badly to all of them so now I refuse to take any. I’ve tried about 5 different painkillers including strong ones.
My parents will never understand, I know what kind of people they are xx
You are 19 your parents shouldn’t be telling you what you can do and can’t do your an adult. Go to your GP and tell them that your parents don’t understand and it’s mentally affecting you. I understand that you don’t want to be arguing with your parents etc but you need to stick up for yourself and if your in pain then don’t do what you need to do because it will never get any better. When your in pain you need to relax and chill and your more likely to feel better a lot quicker x
Because I still live with them, I sort of have to do what I’m told and I cba arguing with them. They never allow me to relax tbh like I’m always on the go or doing something xx
Just because you live with them though doesn’t mean they can’t stop you from doing things, at the end of the day your an adult now and your parents don’t actually have a right to tell you what to do. You need to focus on your health and getting better xx
I wish it was that simple haha. Every time I say something to do with all this, it just starts an argument and I always bring up the fact they are paying £5000 for New teeth and they say their teeth are more important than my health xx
It sounds like they aren’t bothered. If they’re not bothered then why don’t you just not bother with them and don’t do what they are forcing you to do. I know it’ll be hard but they should care about your health and I’m actually shocked that they don’t. You need to find a way to ignore them and unfortunately go through this all yourself. Hopefully when you have your lap if you are diagnosed then they will understand a bit better. If you ever want to private message me you can xx
Yeah, it’s hard but I’m glad I have this forum and my boyfriend is amazing. Thank you, you can message me any time as well xx
Princessk09
I'm so sorry you are in pain. I understand when parents won't believe you. My mother made my life hell.
Have you tried any alternative treatments if paracetamol or ibroprofen are not working.
Here are a few I have tried. mindfulness 4-7-8 breathing technique, hypnosis audio's I like Glenn Harrold pain control or deep sleep ones. I play them before I sleep or if I need to relax or pain is just to much. You tube have a huge variety you can try for free. Put your earphones on and listen through your phone or iPod and block your parents out.
acupuncture, acupressure,
essential oils like Clary sage or frankincense help balance your hormones and with calming mood swings. They also help with cramping pains if you place a drop of clary sage essential oil under the bony parts that sick out of your right ankle it will help your uterus and ovaries when they cramp. Frankincense does the same.
Cramp bark tinture is very good for PMS, mentrual pains and cramps, muscle cramps, IBS, bladder infections and more.
Bromelain, papain, ginger and turmeric tablets these a digestive enzymes and are anti inflammatory also natural pain killers. They help with cramping pain.
Eating pineapple fresh if you can or in juice and papaya will help. You can put some in you golf bag and eat it when you need it.
Nettle , peppermint or ginger tea help with nausea.
I hope you can find something to help you soon.
If you try the things I suggested start with cramp bark and Clary sage essential oil.
The 4-7-8 breathing technique can be used anytime anywhere. So if you're parents are stressing you out, before you take a golf tee off ,are nervous at a golf tournament or when a painful cramp is happening. It is worth learning it's very helpful as it calms your nervous system which stops you mind going in to fight or flight and stops the anxiety and stress feeling .
I hope you find something to work. Let me know if any of them help.
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GP says pain meds affecting my blood pressure and told to almost stop! With nothing else in place to manage the pain!
Is this common? Pain on the run up to period, during and after
First laparoscopy 
Should I go for my third lap?
