Being new here I have spent an awful lot of time in the background, reading as many posts and questions as possible trying to absorb new information and learning as much as possible.
I’m currently waiting for my first diagnostic laparoscopy, so please do excuse me if I seem like I’m either babbinging or wondering around like I don’t know where I am going (metaphorically speaking)
I have suffered, mostly in silence for the past 12 years and am so pleased to be finally (hopefully) getting some answers. I was told that I just had heavy periods and suffered from dysmenorrhoea for the past 10 years, so always felt quite silly when I had to take days off work at the time of the month, I used to think “gosh I don’t have a very high pain threshold at all” when now I realise actually I do! I’ve also been fobbed off with IBS for most of this time as well, I therefore changed my diet to cut out wheat and dairy.
When my pain started to become so unbearable about 2 years ago, and was constant throughout the month my GP finally sent me for an ultrasound with revealed a 5cm cyst on my right ovary. This was left for 6 weeks to see if it grew and on my second scan it had in fact disappeared. (I think this is pretty common) the pains still carried on none the less and I was then prescribed codeine to deal with it.
A few months later I went back to my GP explaining that the pains were actually getting worse not better, she then referred me to a gynaecologist. He was nice, although pretty condescending… he explained that the chances are that I have Endo and that should he perform a laparoscopy and find endo, there was probably little he could do and would recommend that I simply go on the pill taking the packets back to back to 3 monthly cycles. He “sold” it to me in the respect that its just cutting out the whole “risky” operation part and going straight for the treatment instead. I have to say the pains did subside for the first few months, but have since returned with a vengeance and added urine, bladder and kidney infections! (I’d never suffered from them before and trust me, i’m clean, I pee after sex – when i do have sex because lets face it, being in constant pelvic pain doesn’t really put you in the mood for it!)
So I now find myself, after having seen another (female) gynae on the waiting list for a laparoscopy. I have found this site extremely useful, and will start on the endo diet in the next few weeks – it looks similar to the previous non wheat/diary diet I mentioned.
I am of course worried about being diagnosed with endo, and the potential seriousness of the diagnosis. Both my partner and I are keen to have children and both consultants I have seen so far have advised us to start trying as soon as possible. But something i am even more worried about is if they go in and find nothing, if I’ve been though all of this for nothing! What are my other options? What else could be causing me so much pain?
Sorry for the very long post, it’s been very cathartic to write my story down (although a slightly abridged version)