Hysterectomy & CFS

[LynneB]

I'm now running out of options for endo treatment and now have to seriously consider a hysterectomy. I have CFS and wondered if fatigue improved once you have fully recovered from a hysterectomy?

[Hidden]

Hi LynneB

I'm 4 weeks post-op from having total hysterectomy (plus other organ removals) because of endo and adenomyosis. I also been diagnosed with having CFS/ME and IBS for past few years. I have to say, that so far I haven't felt nearly as fatigued as I did before having the operation. However I am not back in my normal daily work routine as of yet and wonder whether I am feeling this good because of all the resting I am doing whilst recovering from surgery.

I hope you find the right solution for you soon and if you want to PM me, feel free anytime xx

[LynneB]

Thank you for your advice, very helpful. I had my appointment today. Been put on the mini pill for 4 months and if that doesn't work I'm going for a hysterectomy. I hope your positive recovery continues. Take care xx

[destiny1091]

Hi

I'm really sorry but my post isn't going to sound very positive so I thought ill apologise in advance!!

I had an hysterectomy 5 years ago and I've recently been diagnosed with CFS, When I had my op my consultant promised me that I would be pain free for the rest of my life..I weighed up the pros and cons as I really wanted children but was told due to how extensive my Endo was and how much damaged it had caused that I would never have children ( as you can imagine I was heartbroken!). So because of this I said ok lets do it! After the op I was sore but pain free in the first time for 18 years it felt great!!..

After three months the pain returned I went back to my consultant for my check over, when I explained the pain had returned I was then told that he knew this would happen because of all the damage the Endo had caused and that he couldn't remove it all because Endo was growing in amongst the scarred tissue, on my bowel and bladder. I was told that I would be in chronic pain for the rest of my life..So because of this I wanted to tell you my story I now disabled because of the pain, my husband is my carer and I'm mainly housebound. I cant believe how much my life as changed because of this illness. I get really angry because they tell us an hysterectomy can help sort endo but unfortunately for me it didn't work.. I hope the mini pill helps...also it might be worth asking for Zoladex its an implant that gets injected into the tummy ( they numb it first) it puts the body into a temporary menopause and if that's helps with the pain then an hysterectomy will help you.

Unfortunately for me it didn't help but he still gave me an hysterectomy anyway! And then to make matters worse discharged me from his clinic because he said there was nothing more he could do, I was advised it was up to my doctor to help me now!

Again Im really sorry that this is so negative but I just wanted to let you know part of my story..If you need to chat or any other advice pm me..take care and I hope your as pain free as possible xx