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Endometriosis UK
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Hysterectomy

Hi There, I've been diagnosed with endometriosis and have been told that the only option for me now is a full hysterectomy. I'm 34 and in shock that this is my only treatment. Has anyone else had this operation at a young age?

Thanks

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Hi Jules. I assume you have been diagnosed by a laparoscopy. What were you told about the extent and location of your endo and do you know if you were seen by an endo specialist or a general gynae/obstetrician? Were you given a specific reason for needing a hysterectomy?

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julesdoc, take some advice from this ^ lady. She's posted huge amounts of really useful information already if you go to her profile and start reading her posts. xx

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Thanks Molly. x

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Hysterectomy does not cure endometriosis only adenomysis (forgive my spelling) have you had excision surgery or researched for an Endo center? Taking out your uterus does not remove endometriosis therefore does not rid you of the disease. Yes it will stop your periods but for most women period pain is mearly only one of the many symptoms of Endo. Please make sure you do your research and get a second opinion from a surgeon who specialises in excision of endometriosis before you even consider hysterectomy as it may not be necessary x

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Hello, hysterectomy dosnt cure endo, and it can still grow back after, even if you have your overies out, which I wouldn't have thought they would do that for endo at your age, as it can cause numerous other health issues,

I have just been offered an hysterectomy for adenomyosis, I also have endo, but my surgeon said it could help with suppressing the endo, but preberbl ly won't help, I've had my endo excised now,

What other treatment have you had, and where is your endo located and stage is it?

Xxx

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Hi I have both adeno and endo had last lot of endo lasered in jan and just offered prostap for 6 months as I'm 32 and they trying to delay my hysterectomy for the adeno

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I have just turned 41 and had last year with endo exision everything removed - due to extent and complications adominal, I am struggling to get back to normal and numerous other issues, including no libdio although not great before - it does open a whole can of worms which I didnt know before but I do not have the pain good luck - if you have it have the excision through endo speicalist not a normal gyno maybe try that first xx

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Please please get a second opinion on this one. As the other ladies have said having a hysterectomy does not cure endo. Was this opinion from a consultant who specialises in endo or just a regular gynae?

Don't be afraid to challenge this first opinion especially if there are other factors involved, eg if you want to have children.

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Honey....DO NOT let them go straight for the hysterectomy, there are many other treatments to try. I'm 36 and facing a hysterectomy now but I've had 18 years of on off treatments including several successful excursions that gave a couple years of relief and 2 relatively miraculous children but now I'm ready for this.

Perhaps you could let us know which area you're in and someone may be able to suggest a specialist local.

Sending positive vibes your way xxx

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Second opinion, all the way. Don't let them do anything you're not comfortable with. You choose. Start reading up everything you can. There's a wealth of knowledge on this forum. Go follow Lindle and read her posts. She's amazing.

sending you love, sister. You're not alone. xx

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Hi, I too, would have a second opinion. As someone else has said, read lindle posts, she know a lot about endo and he kind words and advise have and still do help me, good luck! X x

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I had a hysterectomy last November when I was 43.

My surgeon was an Endo specilaist and at the same time as my hysterectomy, she also performed excision surgery to remove all visible Endo.

My hysterectomy was decided upon after all other treatments were tried. I also had Adenomyosis and a fibroid and so I had a lot of uterine pain including severe cramps for ten days prior to my periods.

I am very pleased that I had the surgery. My pain has reduced by about 95% and I no longer have torrential bleeding.

I would also recommend that you ask your gp to refer you to an Endo specialist.

Best of luck.

Barbara

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Hi Jules

I had my hysterectomy in January I was 27 at the time, I was told it would probably not work as the artifical menopause didnt work for me, but after years of suffering and having tried everything i felt I had no choice. I am in still in pain today i am actually trying to contact my gynae as the pain has been so bad. Dont get me wrong I am still glad I got it as I was living like a junkie on Morphine everyday but i realy was expecting life to be better than this. Make sure you are fully informed and have all the information you need to make your decision, It is a tough one big hugs xxxxxxx

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