Hello, and thank you to everyone for the great support you have given me since I joined this community, I cannot tell you what a difference it has made.<br /><br />I would really be interested in hearing some of your thoughts on this<br /><br />I won't bore you with the long version - god knows, I bore myself with that! - but very briefly, I have Ovarian Remnant Syndrome with endo, have massively extensive adhesions and scarring, and a cyst on the remnant which is proving to be a bit of a swine, adherent to everything except my tonsils and my hair extensions by the look of the MRI.<br /><br />I started ProStap injections last month - I am so looking forward to giving myself the second one today - and I am hoping that will batter it into submission for a while, but if it doesn't, and I well remember getting to the stage where I was not benefiting at all from Zoladex, then my options are few. <br /><br />One of the options is more surgery. I am lucky to have the most fantastic surgeon, whom I trust implicitly and who succeeded last time in freeing up bits of me that had been stuck in the wrong place since the dawn of time, but here's the thing - they all end up stuck together again. This latest cyst is stuck to - and I shall announce these in no particular order, like they do on Strictly Come Dancing - my bowel in lots of places, uterus, pelvic side wall, abdominal wall, some peritoneal thingy the name of which I have forgotten and which I will remember 3 seconds after I hit 'send', my bladder and left ureter. And probably some other stuff too.<br /><br />So basically I am hoping that the prostap will allow me to hobble on to the menopause (never imagined I would be wanted to hurry that along, but the sooner the better) but what if it doesn't? Or what if it transpires that even shutting the ovary off doesn't help much because of the fact that I no longer have organs as such, but rather one multi-functional tangle of knackered bits sitting there like a pile of discarded knitting? I really do not want any more surgery. I swore that I would not have any more, mainly because any benefit seems so short-lived. But you know what it's like at 3am when you are awake and yelping in pain so bad the neighbours are calling the RSPCA - you would consider anything. <br /><br />So here - finally - is my question. Have you come to a point where you decided ''no more surgery'' and if so would you feel like sharing what the key factors were that made you decide?<br /><br />And, because I like to squeeze every ounce out of you while I've got you, second question - I have read about the use of radiotherapy to zap ovarian remnants where surgery is not recommended, although I haven't come across it in the UK, where I live. Has anyone any experience of this?<br /><br />Right, I will stop there because I can see you all thinking ''Who is this woman and will she never shut up?''<br /><br />With many thanks for your anticipated replies xx
Last edited by housebythesea
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