Can't take this anymore.

[Mrscinq]

Sorry that this is such a negative post but I really can't deal with this any more. I have endo, had it for a while, consultant not very helpful and the symptoms seems to change on a regular basis. I suffer terribly with fatigue when I'm due on, I have a coil (fitted March this year ) but it hasn't worked. Dr won't touch me as I'm under a consultant and consultant keeps prescribing pills but won't actually do anything, this month I'm having trouble urinating and opening my bowels and the abdominal pain is unbearable. I just don't know how to deal with it any more.

[Cat247]

I'm sorry to hear this. I'm feeling the same symptom wise at the minute. I've spent 4 years banging my head against a brick wall but finally I'm having a laparoscopy on Monday. You say your under a consultant. In what area? If not gynaecology then you need to push to be referred here. It makes me mad that so many of us go through this and get made to feel like we're making it up. If it gets really bad take yourself to casualty when I had to do that they wrote a letter to my doctor with suggestions. Have you tried a tens machine? I find this helps distract me from the pain.x

[halfpint17 in reply to Cat247]

Hope your lap went ok yesterday x

[gemmap]

reading what your all writting makes me realise im not alone. iv been feeling really helpless of late as nodoby at work seems to understand the pain i am in at the moment. I have been through the same thing but for 10 years i have battled with doctors and surgens to get diagnoised i was told that my depression was the cause of my mysterious pain but they were wrong i was depressed due to the endo and constant fatigue, embarrassiong bowel problems and constant urine infects. i was always worried i would loose my job because i needed time off so have always just carried on but now iv got worse due to coming off the pill and having the copper coil fitted its been hell. iv fianly got a doctor to sit up and listen to me!! now on the pill back to back for 3 months to see what happens, last laporoscopy they never found anything (5years ago) but i have now been offered another. My doctor seems to think it is not always visible especially when your gyneocologyst is doing the lap and is not going to look at the bladder or the bowel and these are all common places it could grow, she has diagnoised it and is helping to gather evidence to produce to the surgens to plead my case!!! im really suprised and heart broken that we all seem to go through this battle with doctors.

[FMcB79]

Hi mrscinq, so sorry that you are feeling so down - I've been suffering with these sort of symptoms for about 8 years, fobbed off by every GP I went to, with a leaflet on dysmenorrhea and painkillers. My symptoms seemed to change as well, I kept diaries of how I felt every day to try and work out patterns, but when it started to affect my bowels, (not just bloody stools which is bad enough, but just masses of blood and nothing else) I really got upset and needed help. I paid for a private consultation with Mr Cutner, who is one of the leading consultants for endo, and he was fantastic. Really understanding and could explain everything very clearly. It wasn't as expensive as I thought it would be, and it was well worth the money. I've been on Zoladex injections for the last few months, while waiting for my op, and although the side effects are unpleasant (you are in a state of pseudo menopause, so hot flushes etc) at least it stops your periods so no more horrific pain, time off work, the fatigue /depression isn't as bad either.

It is so awful when you are going through this and no one really seems to listen, or do anything to help, it's not just the pain (which is bad enough in itself) but all the other symptoms that affect your life. Plus it's not really a socially acceptable illness, so not something you can easily talk about - when you know you look like death warmed up and everyone keeps asking if you feel poorly, "yes, I've just been stuck in the loos all morning pooing blood - sorry I'm late today" is not something you can say at work! But it is a horrible debilitating illness, and should be recognised as such - so you have every right to feel upset and down about it all - I'm sure we all do at times. Could you ask to be referred to a different consultant if this one isn't doing enough to help?

Good luck honey, and know that you aren't alone I feeling the way you are. x

[Nicnac85]

I was in exactly the same boat early last year until I snapped !- sounds bad but I've personally found you have to push them and push them to get through the system and get help. I was off work Feb- June last year, I couldn't walk down the stairs let alone street, bleeding this whole time. I was sent for an emergency ultrasound as a 'precaution' where they found many visible cysts and my pelvis full with fluid from a burst cyst.. The student nurse I saw straight after asked me to go away for six weeks to see if the biggest one grew.... At which point I'd had enough... It sounds rude but I sternly but politely enforced my rights as a human being.. I snapped- true Scorpio!!! Take take take- sting!!!

I had a laparoscopy three days later after being admitted to another local hospital... Don't give up. knowing you're own body push for you're rights at every opportunity. I'm under a new endo specialist now, due another lap in the new year. I hate that so many of us struggle with the everyday little things in life and 'some' doctors will do anything to fob you off..... Truly gd luck. Always available on here to chat. x