I am glad that there is somebody else out there. I had the same thing, I have been seeing a consultant privately. I had me first lap in June 2014 endometriosis was found on bladder and bowel, which been treated. My GP refer me to the UCH endo clinic as my insurance won't cover endometriosis any more. As I start getting symptoms again, They have start formal process at work as I have so much time off work. So days I can't get out of bed during my period. I have been taking the pill i would like to come of it and try for kids but the symptoms terrible (I have period that last 7- 20day periods while on pill!)
I had another extremely painful ultrasound (6th one in the last year), which showed no endometriosis. I was not surprised as it never does. They made fill out a huge numbers of form. Then I saw a nurse who explained very well and gave me 4 opinions that consultant will go in more detail.
I got to see a consultant that week. The consultant did not take a history from me or examine me or even ask me where the pain is worst! He told me that there is no deep endometriosis on u/s and that there is nothing that they can do. He told me take two pills a day. I just can't believe that this all they can do for me. I don't know what I to do if the only treatment is the pill, I feel that should resign myself that I am going to have children and will lose me job in the progress. Has any one been though this? Have you end up having children?Apologies for the very, very long message. Thank you for listening. Xxxxx