Got diagnosed this week!

[TarynW51]

Hi, so I had an appointment with my urologist doctor as suffered bad with kidney infections & water infection. But I left the appointment being told I got endo! I feel like my whole world have come crashing down. I'm 20 years old and worried about the chances of having children are. I won't know more until they do more tests! I've got myself stuck in a little rut and don't want to leave the house and constant crying! Will I be able to have children?? Or have anyone got any advice! Thank you.

[staceymacg]

I'm so sorry to hear!

The only way for a definite diagnosis is through a laparoscopy, have you had this done?

The first step is getting diagnosed, normally that's the hardest part is to find a doctor who listens and gets you answers so you're lucky if you've had that!

Did they say where your endo is?

You should see an endo specialist to discuss treatment! Search for BSGE Endo Centres to see where one is closest to you! X

[TarynW51 in reply to staceymacg]

No hun I had a Ct scan, but waiting for an appointment with gynecologist but they said I got to have a camera up my urethra and one through my belly button to see he full extend of it! I'm thinking about going private to speed up the process of it! As waiting is killing me!

I do think I have it as my period have been awfully heavy and been in so much pain where I'm passing out or being sick! And always have a kidney infection or water infection near my period.

The urologist said I have it, but won't get fully diagnosed until my appointment with gynecologist!

[staceymacg in reply to TarynW51]

Yeah you won't be fully diagnosed until you have a laparoscopy and even then it can be missed, if you read my posts you'll see I had a lap last month under a general gynaecologist who said everything appeared normal.

I've had endo symptoms for 7 years and still struggling to get a diagnosis.

If you're in the position to go private I would say do it as you'll most likely have a long wait. I wish I could go private as it's likely I won't see an endo specialist for months xx

[Diana1980]

Dear Taryn,

I just wanted to write you some words of comfort. I've had kidney infection and frequent bladder infections in my early twenties but later I found out it was because I was just in my first serious relationship and I didn't do a few things right so I was more suseptible so to speak. After a bout of pain (2 months) at 30 years of age, and after seeing 20 doctors including ER doctors, a echoscopist told me that he saw a cysts on my ovaries and one of them was not the 'going away on it's own' kind.I then heard from my gynocologist that it was a chocolate cyst and that I have endometriosis... After hearing that news my world too came crashing down.I remember crying for days.The doctors offered me the pill, but I wasn't going to take it. I did the following: I started to cleanse my system with slowly drinking 2 litres of lemon water per day. Ditched wheat anything! I ate apples, boiled eggs, avocado, fish, drank some organic apple cider vinaigre every day.

(sorry for my English, I'm Dutch btw:). I took chlorella and spirulina daily, maca powder, DIM pills, propolis with cat's claw, and ate mainly fresh vegetables and nuts. Broccoli! Anything crusiferious. This was hard as I am not a vegetable fan:/ I took frequent detox baths and ditched my toxic make-up. I started yoga through youtube and became really good. I lost weight, gained muscle, all cellulite was completely gone. I meditated and felt in best shape in my life. I felt thankful and cleansed. In the meantime I discussed adoption with my boyfriend..the pain stopped, allthough I knew no miracle was happening it was just me working really hard to do as much as I could for my body. We tried for a child and the first try we became pregnant. I had my dear daughter. 2 years later we tried again and we became pregnant. I had my sweet son. Both times I had healthy pregnancies but did have preeclampsia with both kids, not too severe thankfully.I am allmost 37 now and am thinking about going back to my vegetarian diet and yoga+ meditation.I know I have endo..I still ofcourse feel symptoms from it but I wanted to tell you that having endometriosis doesn't necessarily mean no babies.Don't worry dear, but do try to stay away from anything caffeine and wheat to begin with..Have faith, most women who struggle with endo and fertility conceive wether it is natural or via IVF.The main thing is to take matters into your hands and heal and love yoursef..I read somewhere that endo is a desease of the woman who tends to ask too much of herself/ or is too harsh with self critique. I know I am. Just breathe, relax and trust in your body and in the help you will give yourself. BTW after my self treatment period they checked me twice and my chocolate friend was gone, but I think that might have been through pregnancy mostly..My kids helped me a little maybe..All is possible even in times when you feel everything is bleak. It never is truely bleak.

[TarynW51 in reply to Diana1980]

Thank you for your reply! This has put my mind at ease a little! I'm trying to stay positive and keep my mind busy! I will take your tips and use them hopefully it shall work for me!! Thank you again ❤️

[Diana1980]

It is possible. I would just tell any woman with endometriosis regardless stage, to in any case first go vegan,and sugar+ coffee + wheatfree. All it will do is help.And then along that do supplement therapy and yoga. Please know you will feel so much better.I can't believe how much f%^*k ups there are by doctors regarding endometriosis. They still don't seem to realise how common it is becoming, what is the best treatment and how much it affects the lives of women. Ofcourse there are such severe cases where all is beyond repair, but not at such young age, body is always capable of helping it's self when you know how. Noone says that chances are big it's an auto-immune issue. Intolerances,allergies play big part in this.Also we need extra enzymes to break down unwanted tissue (raw veggies or/and supplementing) I just wish someone would shine a spotlight on this condition and maybe fund proper and progressive research. We need a shift in awareness about this, globally.