Feeling Emotional

[AlexR]

Is anyone else feeling rather crappy? (couldnt think of a better word) Feeling rather down and a tad emotional. Getting really fed up of the pains and feeling alone. Just thought id had a vent here. xx

[Katt]

YES! Think you answered my post yesterday about not finding any endo after 2nd lap. Thanks for replying. Feeling pretty low at the moment too. I am desperately trying to self diagnose at the moment as the consultant wants to refer me to urologist but I know it is a gynea problem. She mentioned that I have swollen pelvic veins!!? So looking into that. It seems to be the only thing that is keeping me sane at the moment xx

[AlexR in reply to Katt]

yeah i did reply to your post, theirs nothing worse when youre getting nowhere i went through it for years i was really starting to think the pains and swellings were all in my head. I really hope you get an answer soon and get the help that is needed. Ive been an emotional wreck today going from really irritated everyone is annoying me lol but underneath just feel really down and dont know where to turn to apart from here xx

[Lilyloulou]

Hi ladies hope you are both feeling a bit better today. It's the constant pain that gets to you.... And also lack of empathy from those who don't understand the pain. Sending lovely thoughts.

[AlexR in reply to Lilyloulou]

Hi Lilyloulou lovely to hear from you, im still feeling rubbish had a cry last night and this morning just feeling really down about it all. My partner is away at work so ive not had him here either, i know he cant do anything to help me but emotionally can be there for me. You're right about empathy only someone who has endo can understand the stress and pains. Its hard for anyone else to understand it properly, my friends try and a good friend actually sat and read up about it so she could try understand it a bit better which was lovely of her but trying to always explain the pains etc im going through is hard when they dont fully understand how painful it actually is and how low and tired you can be. xx

[MrsPanda]

Aw I'm sending you positive thoughts ladies - I came on this morning (sorry if TMI!), and the pain is always the worst for the first couple of days, so I'm in absolute agony today. Haven't been able to focus at work, had to go out at lunch and buy a load of painkillers, and my belly has bloated out so much I look 6 months pregnant (oh the irony!)

I know it's not v constructive, but just wanted to join you in your vent and let you know you're not alone!

xxxxxxxxxxxx

[Lilyloulou]

The pain is hard to explain for me is a mixture of the pain you get when you have a urine infection.... A pressure in pelvis and a dull warm ache... Then sharp shooting take your breath away pain. Nothing really helps... It's there with you all day and night... Thinking of you all...

[AlexR in reply to Lilyloulou]

Ive been getting that kind of pain today, normally i get a constant pain that kind of throbbing pain you get from really bad toothache along with shooting pains and ive have had to curl up into a ball with the pain before instant tears and like you say takes your breath away. Its horrible and my partner gets really upset when im like that when hes here. I dont get any break from it. My pains go from me knees to my ribs wish i could have 1 day without or even couple of hours would be amazing. Love to you all xx

[linnyloo63]

hi I just had the worst night possible with symptoms you have noted I also get severe spasms in my legs usually I take tramadol for pain and it relaxes the bladder so you don't feel the pain its just a manageable ache , I have also been prescribed mbeverine an anti spasmodic which also helps ladies keep on top of it this is my life now the endo has completely taken over my body this is my untreatable illness

[bonygirl1]

Oh yes, I think being emotional is part of this horrible illness. Sometimes I don't even know that I'm crying, just gets you really low when you are constantly in pain and aching. It is good to talk to people who understand how you feel it makes you feel a little better. Keep smiling X

[AlexR]

Ive got an appointment with my Doctor tomorrow to find out if i can get any of my meds change as they are not helping much with the pain anymore, i have been on tramadol and solpadol along with ibrufen and amitriptyline for years now for my back and pelvis pains. I have had horrible pains today and my temp has been high currently lying with a fan on full facing me and im still roasting. Still really emotional think being so tired and achy as you say from the pain its a bodies release in a way. I find it very helpful that i can come on here and say whats up or find out more info about this illness. I had sever cramps yesterday as well but now getting more pains down my legs since. xx

[bonygirl1 in reply to AlexR]

I had a temperature last week that's when I was told I had an infection in my belly button and was given antibiotics. Hope it goes well with your doctor.

[AlexR in reply to bonygirl1]

Well went to doctors today and was told my temp is fine even though i was sitting there sweating and was roasting to touch. He took my temp and it was only slightly high not enough for him to worry about anything. So been told just to try keep cool if im feeling hot xx