I've been struggling with this all year now. I seriously am not coping. I'm so sick and tired of being sick and tired! No one seems to understand, that I do not enjoy having to take time off of things. I've had like 3 people have ago at me today, and I can't take it anymore! Hearing oh it's 'just pain', when I've never experienced this kind of pain before. Not only is it the physically side it really does effect the emotional side. It's so horrible having no one that understands!
Hope you are well and feeling better than me! X
Written by
Niamhoconnell
To view profiles and participate in discussions please or .
Hey, my pains started in February and I had to leave my job in the end. I know how you feel emotionally even though I have support, no one actually understand what it's like. I have break downs often. I don't know how to help but to tell you I'm definitely here if you want to talk, even if it's to vent or just have a break down. And everyone else here understand too because we are all going through the same thing.
But if you do need someone please don't hesitate to message me. Would be nice having someone truly understand to talk to, too. I hope your day gets better and remember that some people have never gone through pain like we do, on a daily basis so it's hard for people to even comprehend what these pains are even like.
Lots of hugs. You are not alone x . I am on a similar timeline and have ended up in the same place physically and emotionally no longer able to cope. finally got signed off sick today. X Thinking of you.
Hello I’m New joined today I know this was from 4 months ago but what did your employer / employees say when you were signed off work as I work in a school and all they worry about is the sickness level amongst the staff and then it looks bad if the governors ask I do have doctors on Wednesday but worried she will sign me off !!
I'm in a corporate job. By the time I collapsed they had ( belatedly) realised I was seriously ill and facing major surgery in just 3 weeks time. In fact the director himself spoke to me about it the evening before which was unusual. They were fine and didn't quibble. The only time I had it queried was when I had to extend my leave significantly after the operation due to complications. But after I explained they were fine.
Ultimately if you are deemed unfit to work by your doctor you shouldnt be there but need to be at home resting and recovering. How sickness level stats look really isn't your problem so don't worry about it. Just look after yourself. Xxxx
Thank You for Reply, Yes I will look after myself , I have had a really bad week last week gone as was really extra emotional feeling really stressed / depressed but mainly stressed I think I bit of rest would help I think I mean I have already dropped a day at work I work 4 days a week the management team called me in last week and offered me I could do Half days at work the days I’m really struggling then some mornings I get up and think I don’t really want to go in so I end up pushing myself .
I know how you feel. It's very much the same as me. I am a naturally anxious person and nothing really helps. I sometimes take Kalms, and am.trying meditation as stress definitely aggravates things. If you can afford to go to 50% days it may be worth a try. Unfortunately that wouldn't be an option for me in my role.
hi, how you feeling today? As the lovely ladies on here have said your not on your own endometriosis is rollercoaster that none of us want to be.
I totally get what you mean, people don't understand, I have a brilliant support system but I still get in a tizz over it. Had to laugh at you saying your sick and tired of being sick and tired 😁 exactly what I said to my husband a few months ago.
everyone is different but I've been brutal honest with people, that way it gets it out there and helps people to understand a bit of what we've been going through ( I had no idea I had endometriosis till emergency surgery to remove my appendicitis last Sept, I've had quite a few problems so its been a emotional time as well as all the physical pain).
what have you had done so far? Are you on medication to help with the pain?
I've found this forum a great help as we're all in the same boat and understand how it feels.
hope your pain has eased today and you can have some chilled time.
I'm not on any pain meds a the moment, I seem to get used to them and I get use to them! So I'm kind of putting up with it. I am very open and honest with everyone, I too had no idea what it was. I've got my pre op on Monday and then lap in two weeks after! Hopefully that will sort me out! X
is it your first lap for it? I had one on the may 31st, my surgery in September was open and took a lot of recovery, even though I've had more surgery this time I've felt better after it.
have you tried diet? That reduced my pain but it doesn't help everyone.
have you tried heat pads etc? At least you have your op soon.
sorry your having a bad day, hope you can get some rest and hope for a better day tomorrow, this disease really does suck but your not suffering on your own. Thinking of you . XXX xx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Really low and unbearable pain.. 
Fed up of pain from endometriosis and not finding a painkiller that actually helps
Mental breakdown
Finally Getting Somewhere
