I've been struggling with this all year now. I seriously am not coping. I'm so sick and tired of being sick and tired! No one seems to understand, that I do not enjoy having to take time off of things. I've had like 3 people have ago at me today, and I can't take it anymore! Hearing oh it's 'just pain', when I've never experienced this kind of pain before. Not only is it the physically side it really does effect the emotional side. It's so horrible having no one that understands!
Hope you are well and feeling better than me! X