Any relation endo and Monthly reoccurring... - Endometriosis UK

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Any relation endo and Monthly reoccurring abcesses?

Dollysweety88 profile image
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Last year I had an abcess cut out of my groin/ thigh area then 5 smaller 1's appeared which cleared up with antibiotics. Then a month or so later another 3 smaller abscesses appeared again antibiotics cleared them up. Now I have 1 on my shoulder an arm pit after recently being diagnosed with endo I'm wondering if there is a connection? If my body cannot get rid of the leftover tissue where else can it go?

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Dollysweety88 profile image
Dollysweety88
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ElsieC profile image
ElsieC

Not sure, but I recently posted about external cysts that I get, which sounds similar... endometriosis-uk.healthunlo... - I recently was referred to gynae but none were present at time of appointment so I'm still none the wiser. I am now able to get emergency appointment when i get next one so they can investigate. I'm sure mine tend to flare up before my period though so I think there must be a link.

figgy profile image
figgy

Hi, I am so sorry to hear you are going through this. I have suffered from endo for over 30 years and with abscesses in the groin area for 20 years. I have not only had numerous operations for endo but also for the draining and packing of the abscesses when the antibiotics I had to carry around to knock them on the head as soon as I felt one coming on didn't work as any delay and I would be in hospital immediately. I was convinced there was a link between them and endo but no one would listen to me. After every operation (and there were many) all I wanted to know was why I was getting them, only to be told "it's one of those things" and "you are just unlucky". After 15 years I paid to see a Gyne privately and for the first time ever someone read my hospital file (which was massive by this stage) and when I went in to see him he told me he thought he had the answer. I was diagnosed with a condition called Hidradenitis suppurativa and guess what there is no cure. It does appear on the NHS website now. I then has to visit a dermatologist and was prescribed a wash and a bath solution. Bubble baths became a thing of the past and I was extremely careful with any hair products I used and deodorants and the few abscesses I have had since I have been able to control with antibiotics. I am sure when I was looking at the two on the Internet I did come across a web site linking the two but I have just had a quick look now and couldn't locate it for you but you should be able to find it. I hope this helps. xxx

Scarynix profile image
Scarynix in reply to figgy

In exactly the same situation as you figgy. Diagnosed with HS in my early 20s and endo now at 44 having had numerous surgeries on both tummy and armpits starting to wonder if they are both connected. Currently have a 7 cm deep open wound from emergency surgery on my armpit (3rd time over the years this has been done) also had total abdominal BSO hysterectomy in august 2019 for grade 4 endo which I’ve now been left unable to work since due to ongoing pelvic pain ever since and currently awaiting more surgery from a professor at guys to see what’s going on (possibly endo returned). Getting so fed up of the continuous pain from one or the other. I’m going to ask the professor what she thinks when I finally get my op done. No offence but it’s nice to see it’s not just me going through this.

Eward328 profile image
Eward328

Hi! I just had the thought that maybe the HS is how endo in other parts of the body comes out. I Googled and came upon your post. I have both...and this would make sense. Interested to find a researcher in these fields.

Heloo85 profile image
Heloo85

Just after my diagnosis, it was noted that I got chest infections every month.. The Dr assumed that the Endo was knocking my immune system to allow for secondary infections to take hold! Which, without doubt, can happen! People with chronic illnesses are often more susceptible to infection as we’ve all witnessed with Covid! So yes it could be linked! But won’t be the cause per say!

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