Putting on the mask.....

[katie20]

I dont know why but today things are getting me down more than usual. I have had endo for 13 years, i was diagnosed in my early 20's.

I have had 3 laporoscopys, been lucky enough to have 3 beautiful boys, but the pain is now becoming unbearable.

I am due to see another consultant in 2 wks, as the one i saw last month wouldnt do a fourth lap due to "too much scar tissue" he thought it would be too much of a risk. I have point blank refused a hysterectomy, and the GnRH injections, too many horror stories plus i dont want to cure one problem only to create a lot more!

So i am basically hoping for my 4th lap. I goto bed with the kids at 7, that exhausted, my husband tries to be understanding but my sex drive is at zero plus im moody!

I also work part time as well, so im trying to not let enfo affect me at work but its becoming harder.

I feel like i drag myself out of bed every day put my mask on to face the world, as too many people look at you and think theres nothing wrong!

Im constantly taking cocodamol for pain relief and at home i always have a hot water bottle, my kids all under 8, know mummy has a poorly tummy but i feel bad when some days i cant even sit and play with them.

Does anyone have any advice or suggestions to help me through to my next lap?

Sorry for the rant but i have no one to talk to about it

x

[lillyflower]

Hi, I'm sorry to hear your struggling, I've been feeling the same that I put a mask on after dragging myself out of bed and felt I was crying inside but no one could see. I just wanted to hide from the world. I'm newly diagnosed and still waiting for my follow up appointment but the pain has been so bad since op and dealing with everything they found just felt too much to deal with. I have looked at the hormone treatments and feel the same as you and so am hoping they don't sugest this! Anyway last week after chatting on here I was encouraged to speak to my doctor. She was great listened to me and suggested nortriptyline which is used for chronic pain but is non drowsey, whereas codeine made me too groggy to work could only take at night. The side effect is that it's also used as an anti depressant so along with hopefully easing pain it would help me feel better with coping with it all. So far I'm only 4 days in and cam take 2 weeks to work , the leg pain has eased but tummy pain as bad as ever although I'm due on so always bad. My mind though well it feels like the fog has lifted and I'm feeling more normal if that makes sense. Its hard to explain but I don't feel like I want to cry but I'm not doing cartwheels!!

It must be hard when you feel bad and want to play with your kids but enjoy the good days and don't feel bad, you can't help it so you can only do what you can. I'm sure on bad days cuddles with mummy is lovely!

I hope they give you more help when you see your consultant and if another lap is what you need I hope they do this for you. I've only had one lap, laparotomy years ago and need a third op to remove tubes so ill find out in 3 weeks what will happen next. While I'm waiting for appointment I think the not knowing what will happen or what they're going to sugest actually stresses me out more than anything else so as your waiting too I'm sure that's not helping you.

Good luck xx

[maeline]

hi ,

You are not alone . I have been suffering from endo since my teens and I have three kids aged 9 , 7 and 1 . I went to my hospital

Appointment this week and the registrar was awful pushing hormones treatment down my throat a few times . It would not be so bad but I ended up in a and e on morphine while on my period last month in France while visiting my dad ...

I have been in lots of pain , had 5 laps three were a failure due to malpractice no checking of infection ..

I try to diminish my dairy intake as it can make endo worse and period more heavy.

I try like you to get plenty of sleep.

I take warm bath to relieve the pain .

I take a day at a time as it is the only way for me.

Take care you are not alone you can inbox me whenever you want to .

Xxxx

[katie20]

Thank you both for the support ??, It really means alot. There is so much that the doctors dont know that their answer is to ply you with hormones. Thats definately not for me, i think my body goes through enough each month without adding to it!

my boys are similar ages 7,5 and 2. They do understand bless them, they

will sit with me and play cards and nintendo ds when im

laid up!

Ive tried the co-codamol today for work but its made me really groggy! So here i am in bed with my hot water bottle!

I dont think its helped that the doctor has tried me on 6 different contraceptive pills in the last 12 months, i suffer migraines so im still trying to find one thats suits me.

Big hugs to you both and thank you, sharing with someone really helps

X