Early CKD Support
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Kidney function dropping fast

I was diagnosed with CKD in Dec 2016, unfortunately my kidney function is dropping fast, it was 33 in June 2017 but the blood tests I had last week have shown it’s now dropped to 18. Not due to see my consultant for another couple of weeks so just wondering what happens next? If anyone can share their experiences? In general I feel absolutely fine although I do find I get tired very easily some days. Any help or advice would be much appreciated

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oh its really hurt..in my condition 2015 my gfr was 50 now its 30.& i don't know why droop my gfr.i suggest drink more water,fresh vegetable & fruit.

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Hi, have you changed your diet?, exercise routine? These things can slow the progression. I have been stage 5 at least 2 1/2 years now. If you watch your phosphorous, potassium, protein, it will help you. I have an app on my phone where I put in what I eat every day to make sure I stay under the allowed amounts. I also walk over a mile a day and take many supplements. Hope this helps. Prayers for you. God can do anything.

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Hi what is the app that you use?

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It's called kidney Appetitite

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You did not mention it, but also need to control sodium intake.

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So true, I don't have high sodium so I didn't think of it!

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Hi Wendy

Sorry to hear about your kidney function. I have ckd and my function improved hugely after Thyroid was treated. Do you have a thyroid problem? Xx

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Hi, I would ask doctor to do like an ultrasound on your kidneys. That could show something going on. One of mine was swollen. I saw in wcreen what I thought looked as they describe stone. They said no, but I did have a 6 mm stone that dropped down low and was extremely painful. Somehow I passed it on my own before surgery but didn’t know it. Doctor went in for it, looked around at kidney and put in a stint which helps me pee more. He feels like the stone had been in there wreaking havoc. My numbers are low, but thank God one kidney is functioning 100 %. Meds, high blood pressure, high cholesterol, sodium, potassium, pain killers, also stomach meds can potentially cause damage. I would start there based on my experience. I now make sure I get at least 100 oz of water a day. Many supplements can also cause damage. It takes a lot of reading to somewhat figure it out.

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hi iv had a transplant which was very sucessful..you start workup for transplant at 16 egfr..not sure what age you are..but dont lose hope...avoid ibruprofen..la very low fat diet is good.avoid red meat..fish is good..try not to get stressed will make bloodpressure high..lower weight if above 26 bmi..try to smilegood for you take care...chris

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I'm not sure if you just sent this message about the app I use. If so, I use kidneyAPPetite to track my food intake to watch phosphorous, potassium, etc. the program I purchased was the kidney disease solution which cost about 53.00 I think. That's where I got all my supplements to take as well as establishing exercise routine. Hope this helps you. You're in my prayers.

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My gfr is down to 16 and I'm waiting for a transplant. I've been really strict with my diet since last year when my level was at 22 but it hasn't stopped the decline. My consultant says the gfr can vary slightly from day to day but doesn't usually go back up much once your at stage 4-5 ckd.

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