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Dystonia Society
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Cervical Dystonia/inner ear links

Hello all My sister was diagnosed with cervical dystonia 10 years ag and has 3 m...

Does Artane work for anyone?

Hi all! Just wondering if anyone here is using Artane for their Cervical Dystoni...

What medications work for your ST?

Hi All! I have just joined, but I have had ST diagnosis March, 2019. However, wh...
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New to cervical dystonia

Diagnosed with this condition 9 months ago, struggling with accepting it. I h...

Help with Cervical Dystonia please

Hi, I was recently diagnosed with Cervical Dystonia after being unsuccessfully t...

Mirtazepine

Hi everyone, does anyone have experience of taking mirtazepine and was it helpfu...

DBS - deep brain stimulation for Dystonia

Has anyone on here experienced or has DBS plz - I know mainly it’s for Parkinson...

Recently diagnosed Dystonia

Can anybody plz help me with advice - I’ve been recently diagnosed with dystonia...

Treatment due

Well I’m due to go to the eye clinic in 10 days time for my blepharospasm treatm...

Coronavirus

Am I at hi risk with the Coronavirus. And I have DBS fitted

Medication for what?

After years of complex issues and knowing we can send satellites into space find...

Head and Neck Tremor (External and Internal) with Dystonia

My initial symptoms started with balance issues. The way I would describe it is...

Cervical Dystonia and Exhaustion

Cervical Dystonia and Exhaustion Please can anyone tell me about their experien...

Factors and actions that make your dystonia symptoms worse or better.

Dear All, Will you please share info on what makes your dystonia better or worse...

Medication for Dystonia - what drug improves your dystonia symptoms?

Dear All, would really appreciate if you would share your experience in medicat...

New to this forum and loaded with questions??

I was diagnosed with dystonia but the GP never told me so I learned about it jus...

New to the Dystonia diagnosis

Greetings everyone, Been living with this since around 3 years of age, but only...

any one seeing Dr Saturno,Victoria Hosp,Kirkcaldy

I have been referred to a Dr Saturno at Victoria Hospital,Kirkcaldy,Fife. Has an...

CERVICAL DYSTONIA, DYSPHAGIA AND OSTEOARTHRITIS

Is anyone else coping with these? Had horrendous pain on left side of neck for...

Cervical Dystonia

Hi everyone, I have had cervical dystonia for 30 years and been through many tre...

Floating in water with cervical Dystonia

Hi I’m new here I have neck dystonia my left shoulder never really relaxes I hav...

Clonazepam Experience

Does anyone have experience of taking this drug? On visiting the neurologist for...

Slow drifting/floating limbs

Slow drifting/floating limbs Does anyone experience involuntary drifting of arms...

Side effects of Dysport injections for Cervical Dystonia

Hi Everyone, I have just had my second set of 125 units of Dysport each, into th...

Spasms

Hello, Do any of you have spasms while your are walking and if so how do you man...

Newly diagnosed

Hi, I have just been diagnosed with Blepharospasm, I was wondering what tests if...

Alien limbs/involuntary slow movements

I am trying to find anyone who experiences symptoms similar to mine. I have not...

Extra head turning

Hi Everyone, Last night while watching tv my head was turning as it does but su...

Fit to Fly Certificate?

Do I/we/fellow dystonia people need a certificate to fly? I have travelled quite...

Photophobia

Hi there. I was first dx with ocular Myasthenia and now they think because of th...
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