Posts - Dystonia Society | HealthUnlocked

Dystonia Society

610 members•194 posts

All posts for July 2018

Meige Symdrome

I have had this for over 4 years and get Botox injections. They do help a bit. I now have neck tremors and pain. Does anyone know i CBD oil would help? My jaw...

I have had this for over 4 years and get Botox injections. They do help a bit. ...

Tricia33

•6 years ago

5 Replies

Friendly chat

Hi everyone, I'm new here and live in the North East of England. I was diagnosed with Dystonia, Blepharospasm and Meige Syndrome in April 2018 after nearly 2...

Hi everyone, I'm new here and live in the North East of England. I was diagnose...

MylittleBrody

•6 years ago

1 Reply

CBD OIL is it suitable?

It has been suggested by friends that I try CBD oil. Is itm okay to take when I already get Botox and am on Thyroxine?

It has been suggested by friends that I try CBD oil. Is itm okay to take when I ...

Tricia33

•6 years ago

5 Replies

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neck braces

If people are using neck braces and find they don't do much, I found this travel pillow on amazon "Trtl Pillow - Scientifically Proven Super Soft Neck Support...

If people are using neck braces and find they don't do much, I found this travel...

rtn3421

•6 years ago

6 Replies

DBS SURGERY

hi I have cervical dystonia i had DBS surgery in 2012 I would love to write about my experiences and promise I will do later but I have a question I charge my...

hi I have cervical dystonia i had DBS surgery in 2012 I would love to write abo...

belle2018

•6 years ago

1 Reply

Cervical dystonia

I started suffering with a stiff neck , then spasms which led to my head being stuck ck on my left shoulder at the end of November 2016 . I spent some time...

I started suffering with a stiff neck , then spasms which led to my head being s...

Upsman

•7 years ago

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Generalized dystonia

I have cervical dystonia have had this since 1990. Took them 3 years to diagnose me. My head was everywhere but then started Botox and helped to lift head up...

I have cervical dystonia have had this since 1990. Took them 3 years to diagnose...

keepmoving57

•7 years ago

4 Replies

Help getting to sleep

Would like some ideas on how to get to sleep when my head shakes the minute it touches the pillow. I’ve had this problem fir many years, but it’s now getting...

Would like some ideas on how to get to sleep when my head shakes the minute it t...

Amelia2010

•7 years ago

2 Replies

Help to get to sleep

I’ve had this tremor fir many years, my main concern is my shaking head which starts as soon as my head touches the pillow and makes it difficult to get to...

I’ve had this tremor fir many years, my main concern is my shaking head which st...

Amelia2010

•7 years ago

3 Replies

Recently Diagnosed

Hi All, I was diagnosed with Cervical Dystonia in March. I feel I've had dystonia maybe since I was a teenager (I'm 39 years old) so cried with relief when I...

Hi All, I was diagnosed with Cervical Dystonia in March. I feel I've had dystoni...

WillyWonky

•7 years ago

11 Replies

Help Needed!

Hi all, I have had blepharospasm for the last 7 years only really looking like a possible diagnosis by a neuromuscular specialist but waiting for me to be...

Hi all, I have had blepharospasm for the last 7 years only really looking like a...

Dddark1

•7 years ago

3 Replies

Meige Syndrome

Hi everyone, only joined yesterday I have Meige Syndrome which started in 2008. I get sharp pain in my inner ear and lately a buzzing sound I was wondering if...

Hi everyone, only joined yesterday I have Meige Syndrome which started in 2008. ...

Hidden

•7 years ago

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Posts - Dystonia Society | HealthUnlocked

Dystonia Society

All posts for July 2018

Meige Symdrome

Friendly chat

CBD OIL is it suitable?

neck braces

DBS SURGERY

Cervical dystonia

Generalized dystonia

Help getting to sleep

Help to get to sleep

Recently Diagnosed

Help Needed!

Meige Syndrome

Search posts

Pinned Posts

Latest poll

How well do you feel your dystonia has been managed over the last year?

Topics

Archive