Medication for what?: After years of... - Dystonia Society

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Medication for what?

123geoff profile image
5 Replies

After years of complex issues and knowing we can send satellites into space finding millions a miles away pictures are continuing send answers back. Continue multi-millions a year are sent up from more countries than ever before.

Yet we live in a world full of undiscovered medications to cure such devastation and pain not knowing what to do. At present, I am on a medication that is coming to the end of my bodies reaction and used to the medication. Soon my Tramadol 1000 mg daily will stop. I have tried all that is available with other issues of the brain being killed on my nerve damage where my sensors are in a mess and from being active sporty well educated

I have now beginning to come to a slow down process. The brain and nerve endings I have no medication cure. I'm now registered severe blind, deaf, mute, partly paralysed and it goes on and on. Medication is for what when it can not cure or help. As my typist lip-reads me and is putting all this what I said then what is the most important burning away billions from countries or continue trying to find answers for our medical cures. Yet countries are pleading out for money to help babies and children for eye drops from going blind. Water is vital yet they plead for drills to put taps in. These are countries allowing this to happen yet when put up people are shocked next day all forgotten. Medication for what when it may ease but not be a cure.

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123geoff
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123geoff profile image
123geoff

Not in my lifetime but one day instead of wasted money on Rockets I hope they put it on unknown cures.

in reply to 123geoff

All we can do..is hope.i too have alot of med issues n a cure for a couple could arise after im long gone.

I agree with what ur saying..been there done that with the prescription meds.Its a vicious cycle that only people living as we do,edure daily,hourly n etc.

For me..since i cant change these things..i try to just help the next person at the beginning of this type of life.

I dont want to see another go through what ive been through n continue daily in my life deal with severe medical issues,being every doctors guinea pig,severe depression n etc.

I cant do much daily BUT I can be here daily to lend an ear to listen or shoulder to cry or lean on.

Its about taking what little i do have n paying it forward =

Good Karma

february profile image
february

Dear 123geoff,

I hear you and totally agree with what you're saying! Such a shame that cures/medications are desperately needed! I'm continually frustrated by this! Also, so sorry your medication will no longer be working for you(been there and done that)! I wish I had an answer for all this, but unfortunately I don't. All I can be is a good listener, although I realize this is not enough! My best to you...,;o)

123geoff profile image
123geoff in reply to february

I acknowledge your quote february when leaders are more interested in billions a year on satellites instead of human resources in the medical industry. Each day I live in hope and try to understand this craziness. For future generations, it is not good news this world does not have to me like this ignore pain, life or death.

pompano profile image
pompano

Baclofen was a life and job saver for me. Severe dystonic tremors

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