Posts - Dystonia Society | HealthUnlocked

Dystonia Society

601 members • 202 posts

All posts for January 2018

Paroxysmal dystonia

I have been diagnosed with non epileptic seizures but after researching my symptom I can relate more to paroxysmal dystonia but how do I convince my...

I have been diagnosed with non epileptic seizures but after researching my sympt...

•6 years ago

Do i have dystonia?

Dystonia, correct diagnosis? At around 13 I started to have my „nervous tic“: impulse driven head and neck movements. The impulses were soon felt all over:...

Dystonia, correct diagnosis? At around 13 I started to have my „nervous tic“: im...

•6 years ago

DBS Information

Thank you Cecily.... https://www.youtube.com/watch?v=ORb_x3GtmUQ&feature=youtu.be

Thank you Cecily.... https://www.youtube.com/watch?v=ORb_x3GtmUQ&feature=youtu....

•6 years ago

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Just a little extra info....

I have heard of 2 medical procedures...both very dangerous because of your central nervous system and know of one person this has worked 100%. It involves...

I have heard of 2 medical procedures...both very dangerous because of your centr...

•6 years ago

Living with extreme Cervical Dystonia

Hello friends...I’ve had EMG and every medication under the sun, including liquid morphine. I wanted to end my life but I have 3 beautiful children and an...

Hello friends...I’ve had EMG and every medication under the sun, including liqui...

•6 years ago

Living with Cervical Dystonia

Same as me...I’ve had EMG and every medication under the sun, including liquid morphine. I wanted to end my life but I have 3 beautiful children and an amazing...

Same as me...I’ve had EMG and every medication under the sun, including liquid m...

•6 years ago

Confused . Com

Hi its Susan, just introducing myself. Mid 60s Diagnosed Dec 2017, with dystonic tremor and dystonia. I keep thinking that the consultant has made a mistake...

Hi its Susan, just introducing myself. Mid 60s Diagnosed Dec 2017, with dystoni...

•6 years ago

Neck dystonia

Hi I have head tremors and neck tension. Very embarrassed and self conscious about it. Anyone know the best treatment ?

Hi I have head tremors and neck tension. Very embarrassed and self conscious abo...

•6 years ago

Hi! Post-Stroke Dystonia patient here

I'm an author, screenwriter, and blogger, who's had dystonia since 2005. I'd love to see more research go into better treatments for people with post-stroke...

I'm an author, screenwriter, and blogger, who's had dystonia since 2005. I'd lov...

•6 years ago

Dystonia Society Community Guidelines

The Dystonia Society HealthUnlocked Community is an online support and discussion forum for anyone affected by dystonia. It is a place to share experiences,...

The Dystonia Society HealthUnlocked Community is an online support and discussio...

DystoniaUKAdmin

Partner•6 years ago

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Living with dystonia(10)

Neck dystonia(8)

Just diagnosed(3)

Other dystonias(2)

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