Do anyone get triggered by by other things not just involuntary movements?

[Charts]

I seen a neurologist who thinks I may have dystonia. From what I've read dystonia is triggered from involuntary movements. I get single movements 1st in hand, foot etc and then full body spasms where it pulls my whole body in which last 20-30 seconds, then it will relax, then repeat.

I seem to have a few different triggers, eating peanuts (which I'm not allergic to) a chemical spray I used once, hot bath and mainly over doing it psychically that is the worst trigger.

Anyone else have other triggers that don't seem to be the norm?

[Charts]

Oh forgot one of the worse triggers was taking a medication called midodrine

[peonies18]

From my personal experience any stress good or bad can trigger. Especially the overdoing it bit. I have moved house last Monday and am suffered g violent neck spasms. Hope you can get some relief.

[Hidden]

Mine is triggered by fatigue and stress

[Charts in reply to Hidden]

Yeah definitely fatigue for me. Do you take medication that can stop it?

[Hidden in reply to Charts]

No. Not yet. They’re trying to sort me out 😤

[Hidden]

Anxiety

[Charts]

I did mention this to immunologist and I had a tryptase test and it was normal. I know that's not the only though and he didn't seem bothered to look any further. I use to get these red bumps under my eyes but haven't for ages. When I eat nuts I feel scratchy and heart racing. Peanuts a defo no as it puts me in a full blown seizure type attack

[Charts]

Burning lips forgot about that one! My toothpaste was causing that and realized that it was sodium lauryl sulphate. I also have pots! Recently been diagnosed with antiphospholipid syndrome which now they are saying coexist with pots. The medication I reacted to was midodrine which you have probably heard of as it's for pots. All he did was a skin prick test and said they haven't got the next test available at that hospital. Antiphospholipid syndrome causes movement disorders so looking to see someone at the lupus centre as they recognize it. When I see a neurologist they keep saying it's functional neurological disorder I'm just not convinced we everything else I got going on.