Specialist help please : I live in... - Dystonia Society

Dystonia Society

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Specialist help please

Avamia94 profile image
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I live in Manchester in the UK happy to travel but would like advice on specialist mine isn't. Was in and out of hospital for many years seen loads of people finally met my consultant and he just guessed as at the time he just learnt about it and got lucky saying my condition is a dystonia would like to just make sure and if so get better pain and control over it please. If that is even possible

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Avamia94
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timgann profile image
timgann

You need to see a neurologist who specialises in movement disorders. ASsi your GP to refer you. don’t know know if you have a neuro centre in Manchester. There is one in Liverpool - Walton centre There is a Dystonia support group in Manchester. Details can be found on the Dystonia website or ring them up. I’d you don’t get anywhere get back to me. Hope you get proper diagnosis and treatment Tim

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