Treatment due: Well I’m due to go to the... - Dystonia Society

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Treatment due

Ali_H profile image
5 Replies

Well I’m due to go to the eye clinic in 10 days time for my blepharospasm treatment but am considering postponing it because the eye clinic is in a big city hospital. I live in a small village and I am immunosuppressed for RA - thinking give it a miss for now and rearrange! Anybody else considering pushing back due treatments?

All the best

Ali

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Ali_H profile image
Ali_H
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5 Replies
loppylou68 profile image
loppylou68

In my recent experience the hospitals are cancelling themselves

Good luck though 🍀

ItsmeAC profile image
ItsmeAC

Hi

All appointments here are being cancelled until further notice. The hospital with probably contact you soon to let you know what's happening. Ii they don't give them a quick call.

Stay safe.

Ali_H profile image
Ali_H

Thanks for the replies... currently the appointment is on... still mixed about what I will do but have 12 days to consider this.

All the best

Ali

timgann profile image
timgann

I think most clinics are closed in th UK as staff diverted to covid duties . There is a very good video presentation and Q&A session with Dr Marion on the dystonia website in how cope with no botulinum toxin injections at the moment . Also a key summary of her talk and a transcript of the Q&A session

Hope this helps

Tim

Ali_H profile image
Ali_H

Well treatment done. Very quiet and well run re minimal contact. Consultant positive about right thing to do as my B-spasm gets real bad if uncontrolled. Time will tell!!

Home - clothes & trainers in washing machine, showered with antibacterial soap (yes I had some saved for this occasion just in case) and shower sanitised. Now back to minimal contact so outside to do some more gardening.

Thanks for listening... stay safe and be well!

Ali

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