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Dystonia Society

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Living with dystonia posts

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Cervical Dystonia/inner ear links

Hello all My sister was diagnosed with cervical dystonia 10 years ag and has 3 m...
smilingjane profile image

Medication for what?

After years of complex issues and knowing we can send satellites into space find...
123geoff profile image

Floating in water with cervical Dystonia

Hi I’m new here I have neck dystonia my left shoulder never really relaxes I hav...
Billy1999 profile image
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Slow drifting/floating limbs

Slow drifting/floating limbs Does anyone experience involuntary drifting of arms...
Lily41 profile image

Trihexyphenidyl for secondary generalised dystonia?

Is anyone taking trihexyphenidyl (artane) for secondary (post stroke) generalise...
Terrapin35 profile image

DBS SURGERY

hi I have cervical dystonia i had DBS surgery in 2012 I would love to write abo...
belle2018 profile image

Coping with dystonia

Does anyone out there have dystonia in both legs as feeling really frustrated an...
Blue9874 profile image
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