Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

25,904 members • 27,216 posts

All posts for March 2021

Greetings From a New Member

Hello fellow Parkinson’s sufferers. I am a man in search of answers, and more particularly beneficial therapies for this disease. I find my interactions with...

Hello fellow Parkinson’s sufferers. I am a man in search of answers, and more pa...

kind2animals

•3 years ago

41 Replies

Another B1 thread

Howdy everyone, I'm sorry if this has been previously brought up but, when you started taking B1 as a therapy... what were your first symptoms to regress or...

Howdy everyone, I'm sorry if this has been previously brought up but, when you s...

AaronS

•3 years ago

18 Replies

Keto & fasting for PD neuro protection. How does one combine this with medication times and management?

Intermittent fasting is believed to be neuro protective as is keto. My question is for those who have done or are doing fasting and or keto. How do you do...

Intermittent fasting is believed to be neuro protective as is keto. My questio...

Hidden

•3 years ago

21 Replies

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Mission Accomplished; Return to HU

What a year! Covid or not, I focused on the necessary task of relocating my husband and myself to another city in order to be closer to family. He has Lewy...

What a year! Covid or not, I focused on the necessary task of relocating my hus...

katherinecompton22

•3 years ago

11 Replies

Scientists move closer to developing 'game-changing' test to diagnose Parkinson's

FYI https://medicalxpress.com/news/2021-03-scientists-closer-game-changing-parkinson.html Immunohistochemistry for alpha-synuclein showing positive staining...

FYI https://medicalxpress.com/news/2021-03-scientists-closer-game-changing-parki...

John_morris71

•3 years ago

2 Replies

Restore gold

Has anyone had any experience with "Restore Gold"

jackhammersbro

•3 years ago

6 Replies

Quick and easy way to contact the White House regarding PD funding which when adjusted for inflation, has decreased in the past decade.

https://endingpd.org/share This is quick and easy! Every little bit we do to advocate for ourselves helps! When adjusting for inflation, PD funding has...

https://endingpd.org/share This is quick and easy! Every little bit we do to a...

Hidden

•3 years ago

16 Replies

Lot of questions re DBS lately. Everything you could want to know.

Chapter 1 Introduction to Surgical Therapies for Parkinson’s Disease ............4 Chapter 2 An Overview of Deep Brain Stimulation (DBS)...

Chapter 1 Introduction to Surgical Therapies for Parkinson’s Disease ..............

MBAnderson

•3 years ago

6 Replies

Solgar B1 HCL 500 mg disappeared from Amazon.

I looked on internet and they are gone. Even on the Solgar site they are gone. There is anything equivalent? Thank you.

I looked on internet and they are gone. Even on the Solgar site they are gone. T...

ion_ion

•3 years ago

16 Replies

thanks to all who responded to my inquiry

question?? will "fast walking" reduce my need for sinemet to help control tremors and are there any other physical changes from fast walking to be aware...

question?? will "fast walking" reduce my need for sinemet to help control trem...

jackhammersbro

•3 years ago

4 Replies

Two inspiring stories for the faithful + 1 for laughs😂

Stories of divine intervention in Parkinson's https://www.bbc.com/news/world-europe-12192639...

Stories of divine intervention in Parkinson's https://www.bbc.com/news/world-e...

pdpatient

•3 years ago

1 Reply

What supplements to take when

I was just reading a thread about B6 interfering with levadopa and it made me wonder how many other supplements or medicines you shouldn’t mix

I was just reading a thread about B6 interfering with levadopa and it made me wo...

Annieartist

•3 years ago

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More effective access to the brain . . . probably what Biogen sees in partnering with Denali Therapeutics

Denali Therapeutics certainly seems to be in the “fast lane” in using their proprietary ETV technology to provide medications greater access to the brain....

Denali Therapeutics certainly seems to be in the “fast lane” in using their prop...

redhawk1

•3 years ago

23 Replies

Focused Ultrasound Medicare Reimbursement US

https://www.fusfoundation.org/news/medicare-reimbursement-for-parkinson-s-disease-expanded-to-12-more-states I know this FUS is not the same procedure done in...

https://www.fusfoundation.org/news/medicare-reimbursement-for-parkinson-s-diseas...

Canddy

•3 years ago

Be the first to reply

Why have a DaTscan?

I showed early signs of Early Onset Parkinsons Disease last year (impaired gait, stiffness, bent at the knees, shuffling walk, dystonia in left thigh) and my...

I showed early signs of Early Onset Parkinsons Disease last year (impaired gait...

Wilso77

•3 years ago

43 Replies

Top Institutes doing Parkinson’s Research and Treatment

Esteemed colleagues ( in our own self care, LOL), What institutes (internationally) do you see as the leaders in EITHER traditional or non-traditional...

Esteemed colleagues ( in our own self care, LOL), What institutes (internationa...

GinnyBerry

•3 years ago

1 Reply

Why we should be interested in natural MAO Inhibitors.

This is an interesting concept. https://thesunlightexperiment.com/blog/2017/2/14/natural-mao-inhibitors

This is an interesting concept. https://thesunlightexperiment.com/blog/2017/2/14...

SilentEchoes

•3 years ago

20 Replies

Johnson & Johnson vaccinations. Side effects?

Our county is getting Johnson & Johnson vaccination. I'm waiting for my confirmation of when I'm going to be going in. Has anyone already had it? Any side...

Our county is getting Johnson & Johnson vaccination. I'm waiting for my confirma...

parkie13

•3 years ago

18 Replies

THC/Marijuana: Why/how does it work for PD?

I live in the US in a no-marijuana state but only 5 minutes from a recreational-legal state. I usually go to my sister's house (in the legal state) at bedtime,...

I live in the US in a no-marijuana state but only 5 minutes from a recreational-...

1LittleWillow

•3 years ago

23 Replies

Started Sinemet and my hair is falling out, switching to mucuna

Editing to add that I've also had dry and uncomfortable eyes and unusually blurry vision since starting Sinemet. Yuck! I have been diagnosed with EBMD, but...

Editing to add that I've also had dry and uncomfortable eyes and unusually blurr...

1LittleWillow

•3 years ago

47 Replies

Ambroxol on Amazon

FYI, this is what the pkg looks like. I’m trying it this week and I will update! 🙏🏼

FYI, this is what the pkg looks like. I’m trying it this week and I will updat...

MissRita

•3 years ago

77 Replies

Why consider Ambroxol for PD?

A member of our community here suggested that I repost this answer to their question separately for all with PD to consider. The question is why should...

A member of our community here suggested that I repost this answer to their ques...

Hidden

•3 years ago

114 Replies

Webinar - Young Onset Parkinson's

While people are diagnosed with Parkinson's at an average age of 60, anything younger than 50 is considered young-onset Parkinson's, or YOPD. Join the...

While people are diagnosed with Parkinson's at an average age of 60, anything yo...

SuzeCP

Partner•3 years ago

Be the first to reply

WELL.....Crap!

I hoped Manganese poisoning might explain the tremor. But the blood test says manganese levels are normal. Then I had the DAT scan. Findings:...

I hoped Manganese poisoning might explain the tremor. But the blood test says m...

kaypeeoh

•3 years ago

9 Replies

YUMANITY

Don't know if this has already been posted, but this is very exciting. Up until recently, there has been very little translation from the lab to the clinic. A...

Don't know if this has already been posted, but this is very exciting. Up until ...

Grasss1973

•3 years ago

2 Replies

fast walking?

is this fast walking beneficial?

jackhammersbro

•3 years ago

10 Replies

Cardiac arrest recovery / PD & Lewy body patient / Keeping calm

Hello everyone. My dad, with advanced PD and Lewy Body , but lucid at times , had two cardiac arrests a week ago and is on a ventilator. Organs look good but...

Hello everyone. My dad, with advanced PD and Lewy Body , but lucid at times , h...

tomahawk13

•3 years ago

10 Replies

Stem cell therapy

What do you think of this clinic. https://medicalspa24.com/ I got an email response from them. Here's a screenshot. Since I can't post more screenshots as...

What do you think of this clinic. https://medicalspa24.com/ I got an email res...

delboy381

•3 years ago

7 Replies

Neupro and augmentation

What does augmentation mean? Thx!

MissRita

•3 years ago

18 Replies

Update - Neuro appointment and Neupro!

Hello all! Had an appointment this morning with my Syracuse Dr. and NPP and it was very productive! The NPP told me to come in unmedicated - Lmaoooo - THIS...

Hello all! Had an appointment this morning with my Syracuse Dr. and NPP and it ...

MissRita

•3 years ago

82 Replies

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for March 2021

Greetings From a New Member

Another B1 thread

Keto & fasting for PD neuro protection. How does one combine this with medication times and management?

Mission Accomplished; Return to HU

Scientists move closer to developing 'game-changing' test to diagnose Parkinson's

Restore gold

Quick and easy way to contact the White House regarding PD funding which when adjusted for inflation, has decreased in the past decade.

Lot of questions re DBS lately. Everything you could want to know.

Solgar B1 HCL 500 mg disappeared from Amazon.

thanks to all who responded to my inquiry

Two inspiring stories for the faithful + 1 for laughs😂

What supplements to take when

More effective access to the brain . . . probably what Biogen sees in partnering with Denali Therapeutics

Focused Ultrasound Medicare Reimbursement US

Why have a DaTscan?

Top Institutes doing Parkinson’s Research and Treatment

Why we should be interested in natural MAO Inhibitors.

Johnson & Johnson vaccinations. Side effects?

THC/Marijuana: Why/how does it work for PD?

Started Sinemet and my hair is falling out, switching to mucuna

Ambroxol on Amazon

Why consider Ambroxol for PD?

Webinar - Young Onset Parkinson's

WELL.....Crap!

YUMANITY

fast walking?

Cardiac arrest recovery / PD & Lewy body patient / Keeping calm

Stem cell therapy

Neupro and augmentation

Update - Neuro appointment and Neupro!

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