Using this forum: This community is blessed... - Cure Parkinson's

Cure Parkinson's

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Using this forum

CPT_Helen profile image
30 Replies

This community is blessed with an abundance of highly intelligent and well-informed participants. Many participants have a high degree of experience and expertise on various aspects of the Parkinson's challenge. The community provides a place for people with Parkinson’s around the world to come together and support each other. We know that connecting with others can be of great help in coping with Parkinson’s. We want to ensure that the discussion pages are being used in the best possible way.

Please take a few minutes to familiarise yourself with our Code of Conduct below

We ask that all members:

•Are respectful of others

•Communicate with empathy - other people have feelings too

•Strive to improve the discussion and do not use this space to post about non-Parkinson's related matters.

30 Replies

All my communications will be sprinkled with copious dose of empathy

KERRINGTON profile image

Thank you for all your work with us. This is such a wonderful site.

PONSPARKIN profile image


ParlePark profile image

Thank you and greatly appreciated

chartist profile image

This forum is a great resource for PWPs and a place to share useful information that many PWPs can use and it is also a place where members can not only find practical solutions and support, the latest PD related news & updates, but also a place to find moral support when the going gets tough! It will be very nice to keep all of those good qualities intact for years to come!


park_bear profile image
park_bear in reply to chartist


rebtar profile image

Thank you, Helen.

Gioc profile image

Definition of empathy

1: the action of understanding, being aware of, being sensitive to, and vicariously experiencing the feelings, thoughts, and experience of another of either the past or present without having the feelings, thoughts, and experience fully communicated in an objectively explicit manner

also : the capacity for this

2: the imaginative projection of a subjective state into an object so that the object appears to be infused with it.

the ability to share someone else's feelings or experiences by imagining what it would be like to be in that person's situation.

It also applies if you don't have PD.

Just to understand the context in which we find ourselves.

Despe profile image

Empathy, it is, Helen!

Thank you for a job well done.

Fed1000 profile image

After the diagnosis I was desperate, alone and without knowing what to do, then I discovered this site. The courage and the desire to fight are back. Thank you Helen.

boundless profile image

This forum is one of the hi-lights of my day. I feel so much better now that I read it. I am now getting information aout PD that I didn't know existed, My doctors are not very informed about PD. and sorry to say but the L.A.Parkinson's office is neither........Thank you Helen for all that you do.

FMundo profile image

This forum, along with Parkinson's News Today and Scott Simon's The Science of Parkinsons are the primary sources of 15 sources that I draw from weekly in building my database named Parkinson's Online - which currently has 3,400 items collected over the past three years.

lempa_nik profile image
lempa_nik in reply to FMundo

What is the URL ? I could not find it online.

FMundo profile image
FMundo in reply to lempa_nik

Parkinsons Online does not have a url, it is accessible only via EverNote software as a Notebook. You download the software, available for no cost at Then I can give you access to the Notebook if you send me your email address.

lempa_nik profile image
lempa_nik in reply to FMundo

OK, thanks.

honeycombe3 profile image

As a former regular user of the site it is most heartening to view these simple guidelines. Thanks.

Goldencbc profile image

I have learned so much from this group and have appreciated the discussions and the support we all can provide each other. I am amazed by those with such a strong research focus. Thank you all.

CPT_Helen profile image

Please note that a number of posts have been deleted this week following complaints by users. Once again I refer you to the code of conduct. Many thanks

jakuhama profile image

Describe shingles pain

eivovla profile image


My mother (age 75) has Parkinsonˇs illness. She is now in very bad condition. She canˇt walk, she barely eats anything. Doctors gave up on her. They said that she will die soon.

She cant talk, she doesnˇt respond on questions

I have heard for the late dr. Antonio Constantini and his method 's for Parkinson treatment.

Does someone practice dr. Constantini work?

Can you help me, please?



Gioc profile image
Gioc in reply to eivovla

Deara Eivovla, I'm very sorry about your mother and I understand your concern, Parkinson's can sometimes be overwhelming for everyone, caregiver , patient and doctors.

However a little help is always possible, but you should write the same message in the form of your personal post and not as a reply to another poster because this way it will work better. This is an easy thing to do and you will have all the help and the solidarity and the answers of the colleagues of this forum. If you have difficulties I can explain it to you better, it's a simple question of form.


eivovla profile image
eivovla in reply to Gioc

Thks, Gio.

Do you know how long or in what time thiamine starts to operate. Is this individual or is it last week or two to see anything, bad or good?

Gioc profile image
Gioc in reply to eivovla

Dear Evoila,

it's very subjective and sometimes takes a little time, but take my advice and open your own post and you'll get a lot more answers in a short time.


chartist profile image
chartist in reply to eivovla


Here is alink to some comprehensive information about B-1/Thiamine HCL/HDT :

Good luck and keep us posted on how you do!


eivovla profile image
eivovla in reply to chartist

Is there someone in Italy or anywhere, who practice dr. Constantini s work?

Thanks man

Gioc profile image
Gioc in reply to eivovla

ok ho capito

eivovla profile image
eivovla in reply to Gioc

Grazie, Gio

Gioc profile image
Gioc in reply to eivovla

Dovere... non sarà semplice. Ciao!

GymBag profile image

can we have the names of the complainants . Can anyone gang up and send multiple complaints and get someone banned ? Is there away the rest of us can have a say or provide input. Is there an appeal process where we can speak for the accused.

HekateMoon profile image

Thank you Helen. Here i have come to encounter wonderful, warm intelligent people that makes me feel welcome and valued. I cherish them all. The bits of research are presented discussed and explored. It challenges me to ask questions and share my own experiences, to identify with others, to find solutions together. To realise that we are not alone.

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