Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

26,504 members•27,915 posts

All posts for December 2020

Anxiety and parkinsons

My mother has severe anxiety related to parkinsons even after taking clonpazem which only helps a little. I was wondering if there's anything out there that...

My mother has severe anxiety related to parkinsons even after taking clonpazem w...

UKNaz

•4 years ago

1 Reply

Any experience with Kynmobi?

Has anyone had experience with a new drug called Kynmobi? It purports to be an effective way to treat off times quickly - improvement in motor symptoms at 15...

Has anyone had experience with a new drug called Kynmobi? It purports to be an ...

desertbush

•4 years ago

5 Replies

Outpace Parkinson's - Has anyone used it?

Official intro to the app: Outpace Parkinson's is a yoga app specially designed for people with Parkinson's Disease. The app contains video demonstration of...

Official intro to the app: Outpace Parkinson's is a yoga app specially designed ...

Farooqji

•4 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Another computer connection puzzle

I can access the daily list of new posts, with no problems. BUT when I go to rea d a comment , MY likes or private conversations, I have to sign in AGAIN...

I can access the daily list of new posts, with no problems. BUT when I go to rea...

Sapeye2020

•4 years ago

11 Replies

90% paralysed from the waist down when OFF the influence of L-Dopa. Does anyone share these symptoms ?

While getting up in the morning, with virtually no L-Dopa “coverage” I’m practically incapable of walking the 3 meters that separates the bed from the...

While getting up in the morning, with virtually no L-Dopa “coverage” I’m practic...

9Rafiki9

•4 years ago

24 Replies

Ozzy Osbourne cancelled his plans to visit Switzerland for medical treatment for his Parkinson's disease due to restrictions

Ozzy Osbourne cancelled his plans to visit Switzerland for medical treatment for his Parkinson's disease due to restrictions during the global health crisis....

Ozzy Osbourne cancelled his plans to visit Switzerland for medical treatment for...

Farooqji

•4 years ago

4 Replies

Brief PTT FUS update

It’s been almost 2 months since my procedure. For over a third of my life I have had trouble walking due to dystonia twisting my left leg onwards like a stroke...

It’s been almost 2 months since my procedure. For over a third of my life I have...

Trixiedee

•4 years ago

61 Replies

Let's learn to disagree with respect

If you are a member of this forum, you or someone close to you has some health issues. That on its own is a big deal We are not clones of each other. We have...

If you are a member of this forum, you or someone close to you has some health i...

Grumpy77

•4 years ago

11 Replies

It looks like ChrisWF has left us.

....

Hidden

•4 years ago

20 Replies

Rich a.k.a Silvestrov gave me permission to post our communication. Rich is a deep dive researcher.

1 of the ongoing disputes here is whether not a PWP be can recover most or all of their health. Note the bottom paragraph which he attributes to his...

1 of the ongoing disputes here is whether not a PWP be can recover most or all o...

MBAnderson

•4 years ago

32 Replies

Pandemic-Related Social Isolation Linked With Worsening Symptom Severity, Quality of Life in Parkinson Disease

Amid the coronavirus disease 2019 pandemic, patients with Parkinson disease reporting feelings of loneliness were found to experience greater severity of...

Amid the coronavirus disease 2019 pandemic, patients with Parkinson disease rep...

Farooqji

•4 years ago

2 Replies

Sinemet vs Rytary

In my 5th year and thus far, I’ve been taking Mucuna, azilect and Neupro patch still doing well with slow progression with symptoms only on the left side. I...

In my 5th year and thus far, I’ve been taking Mucuna, azilect and Neupro patch...

Hidden

•4 years ago

16 Replies

A Message to ChrisWF and the Entire Forum

ChrisWF and all Forum Members, To be clear, I am one of the people who complained about two of your replies, because I felt you were using sarcasm and...

ChrisWF and all Forum Members, To be clear, I am one of the people who complai...

chartist

•4 years ago

62 Replies

Should We Encourage the Michael J Fox Foundation to Advocate for PTT?

Should we all contact the Michael J. Fox foundation to spur advocacy for Pallidothalamic Tractotomy (PTT), a form of Focused Ultrasound which has proved to be...

Should we all contact the Michael J. Fox foundation to spur advocacy for Pallido...

jimcaster

•4 years ago

63 Replies

Avoid levodopa phobia

I was reading Simon’s latest article about the PD drug development pipeline, which is a good read anyway -...

I was reading Simon’s latest article about the PD drug development pipeline, whi...

Cagey84

•4 years ago

73 Replies

CUE1 - a little gizmo to improve movement

Has anyone tried this? https://youtu.be/7cQ7XMQ2LWI I merely post this for information. Perhaps it will help someone...

Has anyone tried this? https://youtu.be/7cQ7XMQ2LWI I merely post this for info...

Dap1948

•4 years ago

26 Replies

Bad reaction to antidepressants

Diagnosed recently ,worst thing is anxiety. Was prescribed Sertraline but after only two tablets had terrible bladder and rectum pain so had to stop.I can't...

Diagnosed recently ,worst thing is anxiety. Was prescribed Sertraline but after ...

Chippy10

•4 years ago

13 Replies

This night time drink sounds interesting

Just came across this and have not tried it yet, but looks like a good remedy for people having problems staying asleep through the night (just ignore the...

Just came across this and have not tried it yet, but looks like a good remedy fo...

faridaro

•4 years ago

9 Replies

PD, Stroke Prevention and Recovery With Melatonin

As though dealing with PD isn't bad enough, PwP are thought to have an increased risk for stroke and a poorer outcome than non PwP, according to the...

As though dealing with PD isn't bad enough, PwP are thought to have an incr...

chartist

•4 years ago

23 Replies

Sound tberapy.

Has anybody heard anything about certain sound frequency which deals with the plaque.Apparantly there has been some tests done?

Has anybody heard anything about certain sound frequency which deals with the pl...

Gwennie1

•4 years ago

1 Reply

Lead, Bones and Aging

Sort of OT, but lead is bad for your brain: https://rhyobrain.blogspot.com/2020/12/topical-all-trans-retinoic-acid-and.html

Sort of OT, but lead is bad for your brain: https://rhyobrain.blogspot.com/2020/...

Rhyothemis

•4 years ago

Be the first to reply

IndigeationO

Doe's anyone suffer with indigestion? I have something that is new to me. I get these bubbles, th ey act...

Doe's anyone suffer with indigestion? I have something that is ...

guy1947

•4 years ago

3 Replies

abandonment of AAC devices

I came across the title of a report titled "abandonment of AAC devices" I was wandering if anyone had answers to why people were not using these devices. 1...

I came across the title of a report titled "abandonment of AAC devices" I was w...

d001

•4 years ago

Be the first to reply

AAC apps for Dysarthria

Does anyone know of any application that are alternative and augmentative communication apps for smart phones or tablets ? and how effective are they ?

Does anyone know of any application that are alternative and augmentative commun...

d001

•4 years ago

Be the first to reply

Patient Motor Diary

Patient Motor Diary Completion of a 24-hour diary pertaining to your Parkinson's symptoms is very important to your care. Your cooperation in completing the...

Patient Motor Diary Completion of a 24-hour diary pertaining to your Parkinson'...

Hidden

•4 years ago

3 Replies

B1 dose adjustment, adjustment

I mistakenly decided my thiamine hcl (vitamin B1) needed an adjustment. I based the decision on a small change for the worse on one of my symptoms. I took the...

I mistakenly decided my thiamine hcl (vitamin B1) needed an adjustment. I based ...

Hidden

•4 years ago

23 Replies

Help! Early stage PD dementia?

I am panicked that I may have early stage PD dementia. I don't usually have dreams, but last nite I awoke at 3 a.m. at the moment I was "seeing" a honey bee...

I am panicked that I may have early stage PD dementia. I don't usually have drea...

Arlington7

•4 years ago

7 Replies

Empathy

I remember many years ago when the company I worked for for 40 years brought in another company as a personal motivator/attitude changer. One of our managers...

I remember many years ago when the company I worked for for 40 years brought in ...

GymBag

•4 years ago

13 Replies

[The role of thiamine in neurodegenerative diseases] [Article in Polish] Irena Bubko et al. Postepy Hig Med Dosw (Online). 2015

Abstract Vitamin B1 (thiamine) plays an important role in metabolism. It is indispensable for normal growth and development of the organism. Thiamine has a...

Abstract Vitamin B1 (thiamine) plays an important role in metabolism. It is ind...

Gioc

•4 years ago

33 Replies

"Alternative" treatments are not harmless when whey cost you quality of life

It's common to read on this forum that alternatives are harmless and have no side effects. But what about when a PWP eschews traditional treatment in favour...

It's common to read on this forum that alternatives are harmless and have no si...

Hidden

•4 years ago

74 Replies

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for December 2020

Anxiety and parkinsons

Any experience with Kynmobi?

Outpace Parkinson's - Has anyone used it?

Another computer connection puzzle

90% paralysed from the waist down when OFF the influence of L-Dopa. Does anyone share these symptoms ?

Ozzy Osbourne cancelled his plans to visit Switzerland for medical treatment for his Parkinson's disease due to restrictions

Brief PTT FUS update

Let's learn to disagree with respect

It looks like ChrisWF has left us.

Rich a.k.a Silvestrov gave me permission to post our communication. Rich is a deep dive researcher.

Pandemic-Related Social Isolation Linked With Worsening Symptom Severity, Quality of Life in Parkinson Disease

Sinemet vs Rytary

A Message to ChrisWF and the Entire Forum

Should We Encourage the Michael J Fox Foundation to Advocate for PTT?

Avoid levodopa phobia

CUE1 - a little gizmo to improve movement

Bad reaction to antidepressants

This night time drink sounds interesting

PD, Stroke Prevention and Recovery With Melatonin

Sound tberapy.

Lead, Bones and Aging

IndigeationO

abandonment of AAC devices

AAC apps for Dysarthria

Patient Motor Diary

B1 dose adjustment, adjustment

Help! Early stage PD dementia?

Empathy

[The role of thiamine in neurodegenerative diseases] [Article in Polish] Irena Bubko et al. Postepy Hig Med Dosw (Online). 2015

"Alternative" treatments are not harmless when whey cost you quality of life

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