Patient Motor Diary

Patient Motor Diary

Completion of a 24-hour diary pertaining to your Parkinson's symptoms is very important to your care. Your cooperation in completing the 24-hour diaries before each visit will be very helpful to your neurologist to finely tune your medical management and/or program your deep brain stimulator.

parkinsons.va.gov/resources...

[Hidden]

Hi Roy, I recommend that you also track the food and drinks you ingest (i.e., the time, the food/drink type, and the amount)... This will be important to determine how sensitive you are to dietary protein... Also, it may be interesting to track if you are constipated...

[JMSL]

I have tried to track all of that stuff in a log but my problem has been that my symptoms and/or side effects don't fit the descriptions so I (as well as the 2 MDS neurologists that I've seen) remain uncertain as to whether my "twisty" gait, tapping foot, or pounding heart are from being "off" or if they are some form of dyskinesia (or if I'm both off & dyskinetic at the same time)! I've used different tracking forms but most recently used the VA resource that you referred to, because a clinical study that I was interested in said that's the form they have patients use to record off time.

I changed the descriptions to fit my own situation but it has still been difficult to ascertain whether I need more or less CL without just trying a dosage change. Does anyone have a log that encompasses the whole 9 yards, meaning food tracking, constipation, hydration, etc plus the symptoms & side effects?

[Hidden in reply to JMSL]

all of that stuff in a log

Using your computer and not smartphone -

Join my Facebook group Parkinson’s thiamine hcl

facebook.com/groups/2322600...

There u will find Files. ClickOpen , the document is

3 Pg P D Sym-11-5. xlsx.xlsx

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