Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

26,011 members • 27,308 posts

All posts for April 2019

New clinical trial: Terazosin for Parkinson's Disease (TZ-PD) April 5, 2019

The TZ-PD trial will be a 1:1 (active:placebo) randomized, double-blind, placebo-controlled Phase II trial to evaluate the safety and tolerability of terazosin...

The TZ-PD trial will be a 1:1 (active:placebo) randomized, double-blind, placebo...

•5 years ago

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Ataxia and Parkinson’s

Does anyone have Ataxia along with PD? I have noticed it is getting worse and is not being helped by HDT. The parkinsonism is still responding to the HDT. It...

Does anyone have Ataxia along with PD? I have noticed it is getting worse and is...

•5 years ago

Part 3 of the energyblueprint series

Interesting again. Around 23 minutes through talks about the vagus system https://www.theenergyblueprint.com/brain-masterclass/

Interesting again. Around 23 minutes through talks about the vagus system https:...

•5 years ago

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DID YOU SWITCH FROM SINEMET TO RYTARY? HOW EASY?

Hi,please help as usual with your experience.Are you currently on Rytary?Did you switch from sinemet to rytary?Please share your experiences as regards minimum...

Hi,please help as usual with your experience.Are you currently on Rytary?Did you...

•5 years ago

Patient Stories: First reported case of Vitamin E deficiency

https://danishbhatti.com/patient-stories-first-reported-case-of-vitamin-e-deficiency/

https://danishbhatti.com/patient-stories-first-reported-case-of-vitamin-e-defici...

•5 years ago

DOES B1 Thiamin Help In extending the on Period of Sinemet?

Hi friends, for those Pwp using sinemet with B1,who feels B1 has been effective,would you say B1 helps to prolong the effect of sinemet. I am currently getting...

Hi friends, for those Pwp using sinemet with B1,who feels B1 has been effective,...

•5 years ago

Anyone on Inbrija

Finally got our Inbrija prescription. 2 capsules at a time seems too strong ( PWP is on a low dose of rytary due to DBS). Jury is still out. Anyone else...

Finally got our Inbrija prescription. 2 capsules at a time seems too strong ( ...

•5 years ago

Exerciser

My husband,79, has been having a lot of bad days ,feeling out of it due to stress and the continuing progression of Parkinson's. I remembered our Exerciser...

My husband,79, has been having a lot of bad days ,feeling out of it due to stres...

•5 years ago

MJFF posted on B1

https://www.michaeljfox.org/mobile/news-detail.php?thiamine-vitamin-b1-and-parkinson

https://www.michaeljfox.org/mobile/news-detail.php?thiamine-vitamin-b1-and-parki...

•5 years ago

Dopamine Agonist

Alternatives to Mirapex?

Alternatives to Mirapex?

•5 years ago

News from Italy..

https://www.lanazione.it/empoli/cronaca/parkinson-1.4534772 I know it's in Italian , but I think it's worth sharing. It talks about Palmitoiletanolamide , a...

https://www.lanazione.it/empoli/cronaca/parkinson-1.4534772 I know it's in Itali...

•5 years ago

Switching from generic Carbidopa/Levodopa to Rytary

*** Update*** I will be starting on Rytary from tomorrow. I will keep everyone updated. Here is the link to the new medication: https://rytary.com/...

*** Update*** I will be starting on Rytary from tomorrow. I will keep everyone u...

•5 years ago

I'm new here.

Their are no dating sites designed specifically for Parkinson disease. Many of the dating sites are scams. Many of the woman just want your money. I live in...

Their are no dating sites designed specifically for Parkinson disease. Many of t...

•5 years ago

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B-1 Dosage Change

I have been on B-1 for at least 3 weeks at 1 gram in the morning with no improvement that I can tell. Should I increase the dosage or is it too early? I am...

I have been on B-1 for at least 3 weeks at 1 gram in the morning with no improv...

•5 years ago

Constipation and B1

Is no constipation (daily) an indicator of correct B1 dosage?

Is no constipation (daily) an indicator of correct B1 dosage?

•5 years ago

Help please, Vitacost will not ship to UK

Someone please help I have just tried ordering some vitamin B1 Thiamin HCl from Vitacost but they don't ship to the UK . My local health shop sells it but...

Someone please help I have just tried ordering some vitamin B1 Thiamin HCl from...

•5 years ago

Maybe we could try something similar

Perhaps CBT might be an option for Parkinson's disease also. Read this:...

Perhaps CBT might be an option for Parkinson's disease also. Read this:...

•5 years ago

Photobiomanupilation

Have any of you made use of near Infrared light therapy - it's also called Phtobiomanupilation and what success have you've experienced?

Have any of you made use of near Infrared light therapy - it's also called Phtob...

•5 years ago

Another Question about DBS

I’ve been following the latest discussions about DBS. It makes me feel hopeful. However, I have a pacemaker already and am wondering if that would disqualify...

I’ve been following the latest discussions about DBS. It makes me feel hopeful. ...

•5 years ago

Great guide to supplements to increase energy.

Some have been covered here before, but others are new to me....

Some have been covered here before, but others are new to me....

•5 years ago

Practice Parameter: Neuroprotective strategies and alternative therapies for Parkinson disease (an evidence-based review)

Results and conclusions: 1. Levodopa does not appear to accelerate disease progression. 2. No treatment has been shown to be neuroprotective. 3. There is no...

Results and conclusions: 1. Levodopa does not appear to accelerate disease progr...

•5 years ago

How To Start Eating Healthy......

How does someone who never got introduced to fruits 🍉 and vegetables 🍅 as a kid starts now at 48, (our veggies were potatoes and corn) now 10 yrs with PD?...

How does someone who never got introduced to fruits 🍉 and vegetables 🍅 as a ki...

Chicafromchitown

•5 years ago

Yoga may help ease mood disorders in Parkinson's patients

http://bit.ly/2G5GUDN

http://bit.ly/2G5GUDN

•5 years ago

Council tax

Why has no-one told me that I no longer have to pay Council Tax. I only just heard it on the news tonight that PWP do not have to pay and can claim back...

Why has no-one told me that I no longer have to pay Council Tax. I only just hea...

•5 years ago

neurological examination

Had a checkup by my neurologist, he found that since September of last year there have been no deteriorations. he advised me not to resume pramipexole and...

Had a checkup by my neurologist, he found that since September of last year ther...

•5 years ago

Looking for PD aware Occ Health Uk

Hi everybody. I had an Occupational Health assessment several weeks ago which I need to secure my pension. The assessment was carried out by a GP who I sensed...

Hi everybody. I had an Occupational Health assessment several weeks ago which I ...

•5 years ago

PD Book draft idea as prompt for MJFF : an autism example using anecdotal information

Collaboration is another piece of CAN's strategy. The organization identifies important areas of autism work that are in the anecdotal stage and brings...

Collaboration is another piece of CAN's strategy. The organization identifies im...

•5 years ago

This is interesting. Mitochondria and stress, energy

Part 2 of this mini series. I’m halfway through, it is quite good. https://www.theenergyblueprint.com/mitochondria-masterclass/ PDF:...

Part 2 of this mini series. I’m halfway through, it is quite good. https://www.t...

•5 years ago

Fecal transplant works for autistic children.

https://mol.im/a/6904975

https://mol.im/a/6904975

•5 years ago

dosage of B1 powder

I have been impressed with the positive postings of taking vitamin B1. I want to venture on taking Thiamine hcl high dosage in POWDER form but don't know...

I have been impressed with the positive postings of taking vitamin B1. I want t...

•5 years ago

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