Recently much, much worse. Horrible constipation followed by urgent, painful "going" - little after that it turns to urgent diarrhea, to the point I can''t leave the house and soil myself. Then everything stops. Now, pooping small blood clots, lots of air, but no BMs.
Rinse. Repeat.
Help!
Every time my doctor calls me she talks about one symptom and I have to tell her I'm on to the next.
Colonoscopy a few weeks ago showed no polyps. Inflammation lower colon/rectum which she biopsied and no results yet. One internal hemmerhoid - some external.
Beside myself. 70 and sick, housebound because I never know what's coming next.
Written by
NewEnglander
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Hi, sorry to hear you are going through this. It sounds a lot like colitis (not a doctor but is sounds very similar), I've had it since age 16. It is miserable when first diagnosed and very debilitating. Best to stay near the toilet for a bit until you are on treatment. Don't worry though if it is colitis there are good treatments available and your symptoms will improve. If it is colitis post back here and I and other can give you some tips to speed up your recovery as most people go through years of trying stuff before they hit on something that really helps. Hope you feel better soon and stay close to that toilet it will be a best friend for a while.
Hi NewEnglander, have you ever tried to used glycerol suppositories. I have an issue with what appears to be constipation. After years of tests my Gastroenterologist examined my rectum on 2 separate occasions and said that I was not completely emptying my rectum, leaving behind poop in the area that dries up during the time the body is getting ready for the next bowel movement which then makes me constipated. She recommended glycerol suppositories which act quite quickly and can be used as and when required. I have also been given poop softeners called docusate which I take before bedtime, if I have not been to the bathroom the next morning I then use the glycerol suppository. I was a bit taken aback and wondered why my body was holding onto the poop.
Recently had a MRI called a Proctogram or Defecating MRI, it looks at all if the pelvic floor, how it is working with your bladder, vagina and rectum, identifies any problems like prolapses, blockages, if you are holding back any poop, letting go of urine, checks your muscles etc all in the pelvic region. A very detailed close look at your insides like no other scan.
You go through the MRI with doing nothing, then asked to do pelvic floor exercises and other exercises whilst in the machine, then taken out of the machine and they put contrast in the rectum, take you back into the MRI machine and you are asked to go through the pelvic floor exercises again whilst keeping the contrast inside you and then asked to strain as though going for a poop but not letting go of the contrast. After this you are asked to strain and let the contrast come out if your rectum fully as if going for a poop, the MRI will see if you have any contrast left in the rectum. If you are not able to let go of the contrast in the machine whist laying down with your knees bent, then you go to the toilet and then back in the machine to check if any contrast remains inside. I have also read this MRI can be carried out with contrast in the vaginal cavity or both vagina and rectum.
I had seen a Gynaecologist a few weeks before this Proctogram MRI who had little interest in the fact I personally felt my bowel was involved in my vaginal symptoms. He gave me an examination and diagnosis of Hypertonic Pelvic Floor and sent me off with a referral to the pelvic dysfunction team to teach me how to relax my pelvic floor and then start doing pelvic floor exercises, I'm still waiting for the appointment.
I decided because the Gastroenterologist, who I have been seeing for years and now Gynaecologist had found really, in my opinion, nothing that accounted for my full symptoms that I would pay privately for the Proctogram MRI. I was shocked with the results, I was diagnosed with a grade 3 sigmoidocele as well as a rectocele. This is sitting/dropping in between the vagina and rectum, as I understand it. The sigmoid colon has dropped down and this is what is affecting my variety bowel emptying issues. Some call it a colon prolapse other a hernia.
I sent the clinic report back to the Gastroenterologist who sent it to a Colorectal Surgeon for advice and I sent it to the same Gynaecologist. Waited nearly 4 months to hear the Colorectal Surgeon says its not his field but is Gynaecology, not sure if that is just this hospital since I read other Colorectal Surgeons do operate with assistance of Gynaecology. Anyway I chased up the Gynaecologist secretary and I have been told he will call me on the telephone in December.
I have relayed my experience here after years of nothing from consultants. It was only because I have had most MRI's and other scans over these years to try and ascertain what the issue is, and speaking to the Gastroenterologist around 18 - 24 months ago when she spoke about this strange kind of MRI. Making that decision to book and pay privately for this Proctogram MRI after being discharged by consultants is one of the best decisions I have ever made. No idea where it is going to right now but I do know what it is that has been causing my long-term issues. I understand no examination or the other 5 pelvic MRI/CT scans would have picked this Sigmoidocele up.
Had it been picked up earlier, grade 1 or grade 2, then I read pelvic floor exercises can help. I have been doing exercises for years but perhaps the tightness in my vagina is due to the Sigmoidocele not being able to go up and down properly due to where it has dropped and the weight inside the sigmoid itself. Too many questions still spinning around my head. I do have a Ehlers Danlos diagnosis too which probably has not helped matters.
If you have reached this far then I do hope it gives you an insight into how some of these experts around us just do not always get it right. Other tests are available but they rarely talk about them.
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Imodium plus comfort
IBS or IBD 
i am so fed up of living in pain and having flare non stop!
Please help? Does this sound like IBD? 
Do you guys have had experienced pooping with brown blood or red blood clots?
