Confused ?

[Ado2477]

After suffering with all of the symptoms associated with Crohns for a long time I finally went to see my gp. My fit tests was positive with high markers so I was referred for a colonoscopy in January. They took biopsies and told me there and then it was Crohns and gave me an 8 week supply of oral steroids. I had an mri of my small bowel 2 days ago and today I had my first appointment with an IBD nurse where I thought I was going to learn all about Crohns, how bad I had it, what the next steps are etc….

However it appears that the biopsies have came back with no evidence of Crohns?

I’m still waiting on the mri results but the ibd nurse seemed reluctant to commit to giving me any further info on Crohns at this time. She took some background info and said she would need to discuss the biopsy results with a team to see if the overall evidence suggests Crohns or not

I’m so confused. Do I have it or not?

Has this happened to anyone else?

[Valbaty54]

Have they mentioned Ulcerative Colitis? Biopsies, which take a few weeks to analyse, can tell the depth of inflammation (I think) which helps them decide on a diagnosis of either Crohns or UC, or even Crohns Colitis. It can take a while to sort out exactly what you have, but in the meantime, keep taking the steroids which should help with symptoms. In the meantime, there is good info available online via the Crohns & Colitis UK website.

[Desanthony]

The hospital will most likely be having a multi disciplinary team meeting to discuss your case. Quite often they will only hold these once a week when they can get all the specialists together so you could wait a few weeks before the meeting gets to your case and then a further few days while a report is written before hearing anything. It could be 3 or 4 weeks before you hear anything so keep taking the tablets and if you are worried about any changes seek medical advice.

[Ado2477 in reply to Desanthony]

Thankyou for your response.