Advice

[Curtb87]

So over the last 2/3 years I’ve been going through a lot of stuff with my bowels more so the last year I’ve had 1 endoscopy 3 colonoscopy 1 sigmoidoscopy 1 pill camera and a CT scan I have a mri booked for Sunday this week which will be the 13th of June I’m hoping that we get to the bottom of it as all of my symptoms are related to crohns/colitis I’m constantly in and out of the toilet I’ve started eating a lot more to try and boost some weight eating a bit more healthier and eating in excess of 3/4K calories every day I have a protein shake altrapalen which the GP has finally giving me after this long but it’s not helped at all seems to just come out instantly also they have put me on duloxetine as it’s causing me a lot of stress in n out the drs and hospital lost so much weight feel like I’m wasting away

[bantam12]

Presumably you have had a Celiac test and its negative, have you considered you are allergic to something you are consuming ? Another possibility is Bile Acid Malabsorption or BAM for short, there is a very good website about it. I have this and take Questran which stops it.

[Curtb87 in reply to bantam12]

I’ve had mixed diagnosis in my scopes also ruled out celiac ive went gluten and dairy free for over 6 months I have changed my diet a few times over the last couple of years nothing changes all my symptoms are related to crohns/colitis flare ups abdominal pain being sick bowel movements in and out the toilet with the runs etc I have a few posts I’ve put up previous for advice on here and I don’t think I could have an intolerance to everything I eat because it either comes in being sick or in 💩

[bantam12 in reply to Curtb87]

Have a look at bile acid malabsorption or bile acid diarrhoea, there are variations in symptoms so you don't have to tick all of them.Drs aren't very good at recognising or diagnosing it.

[Curtb87 in reply to bantam12]

Yea I have a lot of that mate my poop floats never sinks always got the runs as well or it comes out soft and like a pencil

Always floats

[SuzyQ67 in reply to Curtb87]

What do you mean by mixed diagnosis with scopes. what about biopsy reports?

[Curtb87 in reply to SuzyQ67]

First report they found a few things wrong inside bleeding had loads of white spots then on the second and third was all different result on the biopsy they have took multiple biopsy tissue also had sigmoidoscopy pill cam now awaiting mri I’m still losing weight still pooping rotten no matter what I eat I just don’t think my bowels function atm it’s stressful as I feel I’m in limbo as to what’s going on and the meds I get giving don’t help

[SuzyQ67 in reply to Curtb87]

Have you had any stool tests done?

[Curtb87 in reply to SuzyQ67]

Yes I have had multiple stools multiple (fit tests) checking bloods in my stools I’ve been through a lot with them I have had 3 colonoscopy roughly 1 sigmoidoscopy 1 endoscopy 1 pill camera CT Scan I’m still having issues and in pain daily it affects going out as I’m constantly worried about the toilet it’s so stressful like I’ve said all my symptoms relate to colitis/crohns ive been checked for intolerances celiac lactose etc but it’s my bowels there constantly moving making noise bloating I either wake up feeling I need to be sick or I’m straight in rushing to the loo had multiple bloods in my stool been put on a few different tablets that help IBS mebeverine buscopan etc still get pains I’ve tried so many diets looked online at foods that affect me more looked on groups I’ve pretty much tried everything I possibly could

[Maisywhippet]

I was diagnosed with ulcerated colitis last year, which in turn affected my autoimmune system. I spent 5days in hospital on intravenous steroids. I now take 1200 mg Octasa am/pm. I thought I would have to drastically alter my diet...but I eat everything that I always did and no bad effects. Had a small blip about 2 months ago and was advised to increase the Octasa for 3 wks. This worked and everything is fine now on the usual maintenance dose. Works brilliantly for me.