Need some advice : Can anyone help I’ve... - Crohn's and Colit...

Crohn's and Colitis Support

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Need some advice

Curtb87
Curtb87

Can anyone help I’ve been having issues for the last 2 years having poops 5 times a day been to numerous blood tests stool samples colonoscopy endoscopy and still haven’t got a clue what’s going on I have every symptom of crohns and colitis but nothing is showing up when there doing tests I need some help sorry for graphic image but that’s just one of thousands and everyday it’s different from blood to just whippy yo mucus to this weird thing please help

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willow24
willow24Administrator

Have you had a faecal calprotectin test? This will show if there is any inflammation in the gut. Are your stools hard and do you ever have liquid/very squishy stools?

Curtb87
Curtb87 in reply to willow24

Always liquid and this was squishy not solid bits I usually have a lot of blood and blood on the tissue I think I haven’t had one yet il check my medical file as I keep everything together to make sure last colonoscopy was to painful to go through properly and I was using the Klean-prep was horrible

Curtb87
Curtb87 in reply to Curtb87

I’ve had a few ct scans

willow24
willow24Administrator in reply to Curtb87

Klen-prep is vile stuff. I would ask them to do a faecal calprotectin test on you.

It takes most of us a long time to get a diagnosis so I can totally understand the frustration and worry x

Curtb87
Curtb87 in reply to willow24

Yea it’s been on going for 2 years now and it gets worse I was originally 9 st now 7.6st lost a lot of weight not helped with the stress which also triggers further symptoms it’s just on going klen-prep was horrible picoaxe was by far the easiest and effective at first they said it was celiac went gluten free and dairy free problems became worse now feels like I’m forever taking a step back with every result all my symptoms lead to crohns/colitis looked online at many other things but everything I have all match crohns/colitis it’s very frustrating especially when they give me nothing to help buscopan and mebeverine don’t help nothing really do

Curtb87
Curtb87 in reply to willow24

Last stool test was (FIT) which got rejected and had to re do yesterday not sure what it’s testing for but stool sample kit was strange had a pin with 4 bits to it and some liquid in the bottle

Pretty much the same. I've lost 6 stone but I'll be honest and say i had it to lose. I've now stabilised but I've lost blood, raised calprotectin but still IBS. I've now stopped taking photos of my poop as no point. Awaiting another Colonoscopy but delayed due to Covid, it was raised to urgent at the end of May but I don't expect it anytime soon

Curtb87
Curtb87 in reply to Viklou

I’ve been in n out myself I’ve only kept poop pics just to keep track off the foods I’m in taking and the effects it causes and I also keep for when i finally see a dietician so I can ask her if these poops are normal because they certainly ain’t and I’m in constant pain just seems to be fobbed off hope you get answers soon

Viklou
Viklou in reply to Curtb87

I've pretty much sussed my safe foods but still push it sometimes lol

Is 5 a bad number, On my up cycle of gut issues I go 12 or more times a day, On down cycle I am constipated and still go 6 or more times a day.

I really hope you get some answers soon, I went months of being treated for ibs, then got cal protein test which was high, eventually got colonoscopy which showed I had crohn’s. Meds had so many side effects they gave up, so I had no medication then all of a sudden poo changed from soft to hard, need to use enema’s and awaiting a scan due to blockage somewhere. Everything seems to be taking forever these days. Keep us updated on your findings, it’s so hard being patient on such a sensitive matter, I felt trapped in my own home. Big hugs 🤗

Curtb87
Curtb87 in reply to DeeDee16900

Thank you dee yea it’s frustrating playing the waiting game I just want them to do there jobs my next steps once I have face 2 face with my doctor is to have an mri or calprotectin because been waiting patiently last heard from my gastro was April I understand I’m not the only one needing help but when they ignore you and still trying to find answers it’s hard

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