MRI enterography was normal (not really a surprise, everything is always normal). Does anybody have an idea of what could cause the following?
I’ve been having symptoms for years but all these tests are normal.
It started with mild gas issues, then it progressed to abdominal discomfort and gas when eating and constant tightness / discomfort in abdomen. Then it progressed to having bowel movements and pain after certain foods such as peanuts and basically all nuts, creams, potato chips, corn, butter, fatty foods, cheese, etc and so I avoided those. Then it got even worse to the point where I couldn’t eat much fiber anymore and would eat mostly rice, white bread, chicken, rice milk, no dairy, etc. Then two months ago I got mild headaches and found out I was mildly iron deficient. A few days later I eat pan fried chicken breasts (something I’ve eaten all the time) but experienced porridge like stool with liquid blood on top of it the next day, along with stinging upper left abdominal pain. I had a similar episode two weeks later when eating mayo. I then had another episode without seeing any blood but with the same urgency for bowel movement. Between the episodes I have been waking up with mild headaches. Friday I had a fourth episode after eating a fatty meat dish. I took a nap a while after eating that and woke up with worse headaches than before and stinging abdominal pain and feeling shaky / confused. The pain changes between being a stinging pain, to a throbbing one, to a pressure type feeling in my left ribs. The pain spreads to the right side too and to my flanks but the “source” seems to be the upper left of my abdomen. I felt so sleepy and tired that I took another nap shortly after. Took a bowel movement and may have seen some blood there, not sure but felt shaky and weak afterwards. This was the worst episode in terms of pain and overall feeling. These episodes have lasted anywhere from two to five days. I feel sleepy every time I eat during these episodes. The upper left of my abdomen is painful to touch during this which is not something I have experienced before. Yet all the tests show nothing. It doesn’t make sense to me. Gastroscopy and colonoscopy with biopsies, calprotectin, inflammatory markers and now MRI of small bowel are all normal. Also been tested for small intestinal bacterial overgrowth, parasites, had liver enzymes checked, checked amylase, bilirubin, etc. I don’t understand why my symptoms are getting worse despite being better with my diet. Each year I have to add to the list of foods I can’t eat. None of this makes sense to me. The only thing that has been persistently elevated but without finding a cause (even after seeing a rheumatologist) is rheumatoid factor which is at 624 as I’ve mentioned many times in my previous posts.
I don’t know if this is related but my other major symptom is constantly feeling very ill and tired, like I’ve been drugged, also feeling the need to sleep all the time but without falling asleep, I never feel awake. My conclusion was that these symptoms (the abdominal issues and the tiredness / sleepy issues) were unrelated but I could be wrong. I’m really not sure what to do anymore. It does seem like I’ll have to spend the rest of my days resting and trying to sleep and that I don’t have much of a future but that may just be my pessimism kicking in.