Ustekinumab: l’v just had a change of... - Crohn's and Colit...

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Ustekinumab

Bluegirl1948 profile image
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l’v just had a change of my infusion from Vedo to Ustekinumab . Vedolizum wasn’t working anymore. I started this new one on New Year Eve, And will self inject every 12 weeks. I’m not sure of the side effects, but when l wipe mainly 1’st stool of the day there blood showing on tissue. Is this normal side affect, or me getting used to the drug. My IBD team say it could take up to 12 weeks to work fully. Is anyone else on this drug , that can help and put mind at rest. I am worried about seeing blood every morning, how long will take to kick in. Many thanks Lynda xxx

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Bluegirl1948
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rg1987 profile image
rg1987

I've been on ustekinumab for 12 weeks now, just about to do the second dose. I had no side effects so far, but they had to put me on prednisolone since my symptoms were getting worse. Now I'm doing well and I'm not sure if it's the prednisolone or the ustekinumab or both. I guess I'll see once I'm off the steroids. They told me that I should do at least 3 doses before they would consider a different biologic as it can take time to start working.

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