Diagnosed with IBD/Crohns this summer, I am a newbie only coming to terms with this. I am on mesalazine (octasa) 6 x 800mg and slowly reducing prednisolone, currently down to 5 x 5mg per day for another week before reducing again by 5mg. Apart from necessary dietary changes to avoid foods that irritate the condition, that is my current treatment plan. Happily there is a marked improvement in the amount of pain and loo dashing that has had to be endured from the start of the original hospital admission and diagnosis, but I am becoming increasingly alarmed by the ongoing trembling and general weakness and exhaustion that makes it hard to do anything other than take to my bed (where I sleep badly at night) or sit in a chair trying to read or watch television (with difficulty in concentrating). Normally a fairly active person I have spoken to doctors who sympathise and say "steroids can be difficult" and "should improve as you reduce the dose". Any fellow sufferers out there found a way to counteract these symptoms and lead a half normal active life? All suggestions gratefully received although I have tried the "good talking to" method with limited success, hence my desperate post!
(I am also an AF - Aflutter sufferer on beta blockers, anti-coags and BP meds and have had frequent attacks lately).