Ustekinumab, Crohn’s

[Chloebrown]

I suffer with Crohn’s disease and recently been having symptoms etc so doctor changed my medication from infliximab to Ustekinumab. So had my first dose of Ustekinumab on Friday the 5th of October. And ever since I’ve been suffering with lower back pain, nausea and stomach pain. I was wondering how long these side effects will last for as it’s been 4 days. 😔

[orsen-trapp]

Might just be the flare getting worse as any new medication takes a while to take effect. I moved from infliximab to vedolizumab and went into remission.

[Chloebrown in reply to orsen-trapp]

Oh yeah, thank you! How long did it take for your new medication to work?

[orsen-trapp]

Can't remember to be honest, and I was still on the 40mg steroids when I switched so that would have affected the flare more than the biologics. All I know is it got me off steroids after a good few years.

[advocate999]

would you like to exchange email addresses?

[Dalia77]

Hi- I’m just wondering whether the stomach pains went away and how you got on with Ustekinumab? My mother has had her first injection (8 weeks after initial infusion) but doesn’t feel she’s making much progress, has suffered from stomach cramps and is feeling a bit deflated. It is early days - wondered if you had any advice and how long before you saw a reduction in symptoms. Thank you.