ANEMIA: I was diagnosed with crohns... - Crohn's and Colit...

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ANEMIA

ferivogue profile image
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I was diagnosed with crohns -colitis after my first acute episode almost 2 years ago. Remicade was discontinued after a year and a half and am now trying Stelera. The bowel symptoms are manageable however I am left with a cycle of debilitating anemia requiring iron infusions (venofer). My doctor feels that I may be the small majority that has this forever. I have been referred now to hematology. Has anyone else experienced this problem?

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ferivogue
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Issycarter profile image
Issycarter

I am the same. Though had to fight to get an iron transfusion as my HB is ok. My ferritin is 6! It just continues to fall. No one apart from me seems that concerned so I know how you feel.

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